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silverFlamingo
Multiple Myeloma Discussion • December 22, 2023
Sharing My CAR-T Recovery & Light Chain Question
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I had the Car-T transplant in February 2023. It was the last option that I had !! Glad I went through this. It has done pretty good for me. It has taken me some time to get my strength back up but still working hard at it. I also have had some issues with my immune system being really low. I am currently taking IVIG therapy (octogam) to help try to get my immune system to go up. Have had some problems with white counts, platelets, and ANC running low. I also noticed on my last labs in early December, that my kappa light chain numbers rose slightly. Is this something that I need to be concerned with or is it just part of the Car-T process ?? I really appreciate getting to read about others going through the Car-T and am Praying🙏🙏 for everyone here and also with other cancers !! We will win this battle !! Do not give up !! New medicines are being made every day !!
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Dave Braucht
Multiple Myeloma Discussion • December 21, 2023
Join Our Webinar on Cardiac Amyloidosis
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The Amyloidosis Support Groups is having a Zoom webinar next month. This Webinar is for all Types of Amyloidosis with Cardiac Involvement Please Join Us Saturday January 20th Noon Eastern 9 Pacific Time. Our Guest Cardiologists: Dr. Melissa Lyle, Mayo Clinic Jacksonville; Dr. Barry Trachtenberg, Houston Methodist; and Dr. Justin Grodin, UT Southwestern Have a question for the doctors? Email it IN ADVANCE to info@amyloidosissupport.org Registery for the webinar by clicking below. Note: Click the Zoom picture to register as the link the bottom is for joining in the 20th. https://amyloidosissupport.zoom.us/webinar/register/WN_8QVEA0rlSJq8_m2T4He_nw#/registration
Video Conferencing, Web Conferencing, Webinars, Screen Sharing

Video Conferencing, Web Conferencing, Webinars, Screen Sharing

Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, conference, huddle, and training rooms, as well as executive offices and classrooms. Founded in 2011, Zoom helps businesses and organizations bring their teams together in a frictionless environment to get more done. Zoom is a publicly traded company headquartered in San Jose, CA.

https://amyloidosissupport.zoom.us/webinar/register/WN_8QVEA0rlSJq8_m2T4He_nw#/registration
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DIahanna • Admin
Multiple Myeloma Discussion • December 19, 2023
Copay Assistance: CPR Funds Now Open
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CPR Funds Now Open: Asthma, Diabetes Health Equity, Multiple Myeloma The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://copays.org/portal/#/login, with access available for patients, providers, and pharmacies.