CPR Funds Now Open: Asthma, Diabetes Health Equity, Multiple Myeloma The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://copays.org/portal/#/login, with access available for patients, providers, and pharmacies.

copays.org is available for financial grants applications for MM

I had self injections of Forteo for about 2 years. Bone density normal now. I think Prolia is used for women.

Husband having SCT on 12/22 as an outpatient. We have 3000 sq. ft house and I have someone coming to install blinds for an hour on Jan.4 in a completely different bedroom and area with its own entrance from where he will be. I will have installer mask etc. Is this safe and what about my house cleaners that come 2x a month? I need this service especially then. Also, if he is staying in a room with no houseplants , is it okay to keep them in another room? These have been here- no new ones. Please advise.

Anyone on Medicare that ned additional funds to support their copay and premiums and have not already gotten funds in 12 months can go to Healthwell and apply for a 12k grant. Income must not be more thanb 500% oif Federal Poverty Levels

Anyone on Medicare that ned additional funds to support their copay and premiums and have not already gotten funds in 12 months can go to Healthwell and apply for a 12k grant. Income must not be more thanb 500% of Federal Poverty Levels

Hi Everyone! At the end of October 2018, I was diagnosed with Multiple Myeloma (Lambda light chain). Since my stem cell transplant on April 28, 2019, I have been taking 15MG Revlimid 21 days out of 28 days a month and receiving Velcade every two weeks as a maintenance treatment. It was about 6 months ago that my Phosphorus levels started to decrease below normal levels, so my specialist prescribed Phospha 250 Neutral to take 3 tablets a day. However, this did not increase my levels, so I was instructed to take 6 tablets a day with no improvement. After seeing my nephrologist, I was told that the issue with my phosphorus levels was caused by my kidneys disposing of phosphorus due to the heavy chemotherapy I had prior to my transplant. The doctor recommended I take two tablets of Phospha 250 Neutral three times a day and be tested for phosphate levels periodically, and when they are low, I should get Phosphate infused. Would anyone be able to tell me if they have had/have similar issues and how they resolved them?

I have a support group member who had a CAR-T about 9 months ago. His myeloma numbers are 0. But over the past month or more, he is "losing" blood, or probably not making enough blood. He is anemic, Hemoglobin down to 7 and 8. Very tired, not much appetite. He has had a blood transfusion, but his drs are not sure what is going on. Has anyone had something similar? Any thoughts?

I did something very “not so smart.” After my radiation treatment last week, I felt a great deal better (80%) with pain on my spine. For whatever reason, I decided, without help from my doctor, to take myself off of about (75%) of my pain medications; OxyContin, Oxxcodone, and gabopenton. I was heavily medicated. The pain was debilitating for 5 months. Well needless to say, I went into massive withdrawal. It was one of the worst experiences of my life. I had every symptom known to man. I did meet with my doctor after four days and now I am on an appropriate plan. 8 days later and I am still very shaky and at times nauseous. My simple advice……Don’t ever do this!