I have been through 2 SCT’s and have been in remission for 9 years. I went into remission after my first one. However, my transplant team had a tandem protocol based on my age and profile. I do not take any medications related to my MM. I follow the directions of my medical team to the letter. I’m here to support and help anybody who has questions. Stay strong! Stay positive!

In July 2025, my father was diagnosed with Acute Myeloid Leukemia (AML), which exacerbated pre-existing conditions including Alzheimer's and Congestive Heart Failure (CHF), thereby creating substantial obstacles. As his primary caregiver, I have taken a leave of absence from my professional responsibilities, and the associated demands are proving arduous. Recent months have seen a marked increase in hospitalizations for transfusions. The medical outlook is unfavorable, and my mother, who has her own health issues, depends on my support. Considering my diminishing resources and energy, what strategic approaches can I implement to effectively support both parents and my best friend? Furthermore, I have extended housing to a close friend who was recently diagnosed with stage 4b cancer. I am experiencing feelings of guilt related to my limited availability to support her, given my primary focus on my parents' needs.

I’m working with an oncologist who is looking at the connection between MM and diet. After refraining from animal proteins 6 days and today having two boiled egg whites for breakfast Plus tilapia for lunch, I feel awful. I felt much better excluding animal proteins.

For constipation, my MSK oncologist recommended otc magnesium citrate, produce or maybe a stool softener.

What are you using for constipation?

Whole Genome Sequencing testing experience I participated in the Whole Genome Sequencing test that Predicts Biosciences ran here through Healthtree and got results that were startling, to the point of "Failed the test successfully." My result came back with "Test failed because <50 Circulating Tumor Cells detected in 21.4 million." That works out to less than 0.000002% zombie cells in my blood stream. My specialist is on mat leave until next month and my local was quite skeptical saying it was likely an "absence of evidence" rather than an "Evidence of absence." In other words, he's not convinced of the efficacy and accuracy of the test. Of those here that did the test, what were your results and what did your local/specialist think of the test and your results? Thanks.

Has anyone had IgA Lambda myeloma with a a good prognosis?

Just started Kryopolis .how long does it take to start seeing numbers go down?

Has anyone not done maintenance chemo after stem cell transplant?

Has anyone not done maintenance chemo after stem cell transplant?