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Playlist: MRD in AML

Are MRD tests and detection thresholds standardized across labs or is it important to complete MRD testing with the same lab each time?

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auburnWolf
Multiple Myeloma Discussion • August 8, 2025
Experiencing No Sweating on Talvey?
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Talvey. Week 11. Starting in the first few weeks, I quit sweating. It's very dangerous. Has anybody else had this side effect? I've now talked to 6 people that experienced this side effect. When I called Talvey and the federal adverse reaction recorders, they both said they had never heard of that before. The Talvey lady acted like she thought it was not the Talvey causing the no sweating situation. One reported side effect is anhidrosis, a condition where the body does not sweat normally or at all. Call in and report all of your side effects. To your Dr, the manufacturer and the adverse reactions people. https://www.google.com/search?q=talvey+no+sweating&oq=talvey+no+sweating+&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRigATIHCAIQIRigATIGCAMQRRg8MgYIBBBFGDwyBggFEEUYPTIHCAYQIRigATIHCAcQIRigATIHCAgQIRirAtIBCTE2MDcxajBqNKgCArACAQ&client=ms-android-verizon-us-rvc3&sourceid=chrome-mobile&ie=UTF-8
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Livvy
Multiple Myeloma Discussion • August 8, 2025
Stopping Revlimid Maintenance: Anyone Else?
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My husband had multiple myeloma but has been in remission since 2017. He had a stem cell transplant in 2017 and had been on Revlimid since after having his transplant. Just recently the oncologist he seen, took him off the Revlimid and told him that now he will just come in every 3 months for blood work instead of every month. We are concerned because we were told back when he had the cancer that he would be on chemo for the rest of his life because this is a cancer that will come back. We just need to make sure this the right decision.
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MsLor
Multiple Myeloma Discussion • August 8, 2025
Experiencing Headaches Before Treatment?
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I was just diagnosed July first. I have not had any treatment as of yet but a PET scan and 2 bone marrow biopsies. I am having more labs before seeing my specialist September 2nd. The doctor discussed induction treatment that would probably be for 3 months. Maybe a bone marrow transplant afterwards. I have only one issue at this point… headaches! Did anyone have a similar experience?
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Bard172
Multiple Myeloma Discussion • August 6, 2025
Insurance Help for Teclistamab + Revlimid Combo?
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Has anyone had trouble getting Teclistamab and Revlimid taken together approved by the insurance company? I was on Teclitamab and my doctor wanted to add Revlimid for a better outcome. There were a few weeks where I was on both before the insurance company said the combination is denied. During that time my kappa number dropped 30% so I think this is a great solution for me. I am looking for any information I can give to the insurance company that this is an accepted combination for treatment of MM. That maybe it is more common than the insurance company believes. Thank you.
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Adnan
Multiple Myeloma Discussion • August 6, 2025
Revlimid and Secondary Cancers: Experiences?
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Has anyone had any experience with secondary cancers caused by long term use of Revlimid ? 1) What kind of cancer was caused 2) after how many years 3) how was it treated Thanks
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LarryP
Multiple Myeloma Discussion • August 6, 2025
8 Years and Still Going: My MM Journey
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Diagnosed with stage 3a multiple myeloma eight years ago. Had back surgery to replace t12 vertebrae with rods and spinal fusion. Then chemotherapy and radiation followed by stem cell transplant then Revlamed which caused me to have myeloma followed by surgery. Then had Car t transplant followed by Talvey I’m on now. Doing ok so far. That’s my journey with MM.