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XimenaG • Admin
Multiple Myeloma Discussion • February 23
Free In-Person Event in Greensboro
📍 Greensboro, NC, we’re coming to you. Join us on Saturday, March 21 for HealthTree Connect to Cures, a free, in-person event created for blood cancer patients and caregivers in your community. ✨ Learn directly from academic and community doctors ✨ Connect with others who truly understand ✨ Discover trusted resources, tools, and support ✨ Take home personalized materials to help you feel informed and empowered Lunch, parking, and beverages are provided. Space is limited, and this event will not be recorded. 👉 Register today to attend in person https://healthtree.org/blood-cancer/community/events/c2cgreensboro2026?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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yellowFox
Multiple Myeloma Discussion • February 21
Can someone help me with my question?
What does it mean when doctors say 80% partial response, after stem cell transplant. Does this mean the transplant did not work?
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XimenaG • Admin
Multiple Myeloma Discussion • February 20
Sharing a Blood Cancer Story & Live Q&A
Some stories don’t just inspire, they stay with you. On February 26, join us for “Unshaken: Navigating Blood Cancer with Jason Mook,” a special event featuring Jason’s powerful story of living with CLL and how education and community helped him and his family navigate diagnosis and care. 🎥 We’ll watch a featured video together 💬 Then Jason Mook will join us live to answer your questions in a Q&A 📅 Feb 26, 2026 | 7:00–8:30 PM EST 🔗 Register here: https://healthtree.org/myeloma/community/events/feb26-watch-partu-unshaken-documentary?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general Bring your questions or add yours in advance so we can prepare with Jason. #BloodCancer #CLL #PatientStories #CancerSupport #PatientEducation #CancerCommunity #WeCareWeCure #HealthTree
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1finegrandma
Multiple Myeloma Discussion • February 19
Bactrim side effects/hair loss
I started taking Bactrim the early part of September 2025 after my CAR T and have been on it continuously since. I have started experiencing hair loss (at a more rapid rate than usual) I am 66 years old woman and have had thinning over the years. I was wondering if anyone else has experienced this? I have my 6-month CAR T follow up next week. I may request that I be taken off it. Please let me know and if it grew back once stopped.
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Rbuttles64
Multiple Myeloma Discussion • February 19
Medicare vs group health insurance for Car-T coverage.
Hello All, Is a group health insurance plan more likely to cover Car-T as apposed to Medicare? If anyone has personal experience or knows from others experiences and would like to share, thank you in advance. I’m trying to decide whether to stay on my husband’s health insurance or switch over to Medicare now that I am 65. Best, Robin
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caraofeve
Multiple Myeloma Discussion • February 17
Change in Price and Support for Lenalidomide
I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra
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caraofeve
Multiple Myeloma Discussion • February 17
Change in Price and Support for Lenalidomide 25 mg
I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra