I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra

I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra

At my recent visit to my oncologist, I thought I heard him say under his breath something about being immune compromised and not having a fever when you’re sick. So I asked ChatGPT (I know) and it seems that that’s a real thing. I don’t have enough immunity to trigger a fever in my body. So it’s more important for me to pay attention to how I’m feeling and if things are changing as opposed to worrying about whether I have a temperature or not. I find this kind of interesting because when I left the hospital, they said, “If your temperature is 100.4 or higher, go to the ER immediately!” However, it seems I may never reach that point. Has anybody else been told (or experienced) that you could have an infection or be sick without a fever? I guess I should clarify: I realize that healthy people can have an infection (cold, UTI, etc) without a fever. Maybe I should say “a serious infection that would normally spike a fever in a healthy person”.

I have ckd 3a. My pc told me I can improve kidney function by switching to decaf. 1. Is there a difference in flavor between reg and decaf black tea? 2. Anyone that has switched noticed an improvement?

I have ckd 3a. My pc told me I can improve kidney function by switching to decaf. 1. Is there a difference in flavor between reg and decaf black tea? 2. Anyone that has switched noticed an improvement?

I was diagnosed with IgA  kappa  multiple  myeloma Ultra high  risk about 9 months ago. Due to the severity of my back lesions, fractures etc. I am not a candidate for Kyphoplasty. Has anyone tried holistic treatments, acupuncture or massages of any kind to help w pain? Thanks

Does anyone have a severe headache after IVIG? I always get a headache 48 hours after treatment Some months are mild, some are very bad. Just wondering if it is normal.

I'm in my 4th cycle of Dara KRD and I suddenly developed very swollen feet at the end of cycle 3. I had a doppler done which ruled out blood clots. Then i had my week off (fourth week of cycle) and the swelling resolved. My oncologist at MSK reduced my dex to 20 mg from 40mg. However after starting Cycle 4, the swelling returned but this time with so much pain in my right ankle up to six inches above that. walking with a limp. So at symptomatic care, they performed an x ray and another doppler which were normal. My doctor called in Lasix 20 mg to take for three days, Has anyone on this therapy had similar experiences and were you and the team able to figure out if it was the dex causing the pain as well or was it carfizomib?

$8000 award. Assistance Type: Prescription Drug Copay or Insurance premium (Medicare Part B only). https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/

$8000 award. Assistance Type: Prescription Drug Copay or Insurance premium (Medicare Part B only). https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/

Back in 2024, I indicated that I was interested in joining the study being conducted by Dr. Ola Landgren at the University of Miami titled "Personalized treatment strategies based on genetics at diagnosis". Then in 2025, I indicated that I was interested in joining a study being done by Predicta Biosciences on a new non-invasive blood test. My question is: Are these two studies related? Can I be in one of them and not the other?

Has anyone experienced facility fees for PET scans? I've just noticed this charge for a PET done last September. With the amount of money cancer centers are receiving for treatment it seems this fee is truly unfair especially if you have reached your maximum out of pocket limit. I should mention the facility I use is MSKCC. With regard to this PET scan, I had not reached the out of pocket max so my bill is $3600 for the PET plus $345 facility fee. For 2026, since I have already reached the maximum would any coming PET also incur this fee? I'm sure this is not sitting well with patients. Any experiences with this are welcome to be shared.

I will be having my T cells collected on the 23. Car t in April. I would like to hear from other people who have been through this process.

HealthTree Foundation, in collaboration with Mayo Clinic researchers, is conducting an observational survey to better understand how smoldering multiple myeloma (SMM) is monitored and treated in real-world settings. If you are 18+ with a history of SMM (whether or not it has progressed), your experience matters. The 10-minute survey is voluntary, confidential, and designed to help improve insights for the SMM community. Participate here: https://htree.org/yoursmolderingmyelomajourney Questions? email support@healthtree.org or call 800-709-1113

We’ve started a new series of smaller community gatherings and would love anyone living with Non-Secretory Myeloma to join our Non-Secretory Gather Community Event tomorrow. To help create a comfortable space for open conversation, these meetings are not recorded. We hope to see you at one of our Community Gather events soon! If you have Non-Secretory Myeloma and would like to attend, please register here: https://healthtree.org/myeloma/community/events/feb26-myeloma-non-secretory-gather-community

I've been on one chemo or another since my diagnosis of MM in 2011. SCT in 2016. Now in 2026 food tastes awful and I have no appetite. Is anyone else having this problem with food? I've lost 25 lbs. over the past year. My Dr. doesn't seem concerned. Peanut butter is the most recent casualty. Right up until a few weeks ago It was one of the few things left I liked, but now it just tastes off. Horseradish sauce, butterscotch pudding and cinnamon rolls are still good.

Good morning, I had AML 2 yesrs ago still on Rydapt and moved from california to tennessee getting divorced and we do not have Kaiser so having to pay 150.00 every business any way i can get sone help? Thank you, Debbie