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Pheba1
Multiple Myeloma Discussion • May 29
Revlimid Vacation
I began with the four drug induction chemo Jan thru April 2024. Stem Cell Transplant in May 2024. 100 days off all chemo to recuperate. Starting Sept. 2024 began Revlimid 10mg. 21 days, and Darzalex FasPro 1x a month. I was okay for a long time. Last few months in a downward spiral with fatigue, neuropathy, loss of appetite, etc. I saw oncologist yesterday. He gave me a Revlimid vacation for one month. Has anyone else done this? I am hoping I feel better. He assured me it will help me feel better. The neuropathy in my feet has spread almost up to my knees. Not pain, just numbness and tingling. Thanks for listening. PS. If anyone is interested in names, I am Pheba1 because my great grandmother was named Pheba. So she is Pheba2. Tracing back a full 8 generations on my direct maternal line, my 8th grandmother was named Pheba. She is Pheba3. I did genealogy at the request of a genetic counselor after I was diagnosed with uterine cancer in 2004. Pheba3 probably died from childbirth complications. According to records I could find she had 10 children. My name is Sharon
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Denise
Multiple Myeloma Discussion • May 27
Extreme Itching
Hi everyone. I have high risk MM but currently MRD- (great news). I have been experiencing severe whole body itching. Has anyone else experienced this? And if you have, what is your remedy! When it happens I lather up with lotion which does give some relief. I am not on any maintenance medication. I'm currently on: Bactrim, Valacyclovir, Iron, B12, Potassium, Hydrochlorothiazide and Oxycontin. The itching is not every single day but at least 3-4 days a week. Any help is appreciated. Thank you Denise