I am 77 years old and live alone but have relatives near by. I don't know if this is the right place or not to find out about Hospice care? If someone could point me in the right direction it would be greatly appreciated!

On Wednesday of last week I attended a birthday party for a friend in my sewing group. She just turned 90. I baked the cake. My first layer cake in decades, a carrot cake. It turned out great. After food and cake we sat around the table chatting. They know I have MM. Then they went around the table in a circle talking about family members, and friends they know with MM. There were 7 ladies and 7 family members or friends with MM. I was floored. Why so many? I saw my oncologist on Thursday. I told him about the party. He said MM was endemic in our area. I asked him what caused it. He said cancer is caused by 3 things; what we do to our self, what the environment does to us, and what we inherit from our ancestors. That was as clear as an answer as I could get. I am guessing that the truth is that doctors and scientist suspect what causes some cancers, but have no proof. I do know I live in a rural area with farming and pesticides. The neighbor behind us died two years ago from Leukemia. Another neighbor died two years ago from Leukemia also. I suspect it may be more complicated. We have something called epi-genes, genes that turn genes on or off. Some people have epi-genes that can mutate a chromosome when exposed to a cancer causing agent. Others have epi-genes that do not get turned on, even if they take a bath in a pesticide. We may never know, but I find the coincidence of MM being endemic in our area interesting.

OK, long story short, I was diagnosed with MGRS in 2021. Had a ACST and have been on maintenance since (Velcade and Darzalex). Went to the doctor today and he recommended CAR-T. Heard a lot about CAR-T for MM, but never for MGRS. I was wondering if ANYONE else has gone through this therapy or have heard of an MGRS patient having this done. All responses would be appreciated. Thanks, Rick

I'm 35 male who was diagnosed on 7/5/2025. Had ASCT on 3/16 and still battling fatigue. I seem fine on days when I'm out and about and doing stuff but when trying to work my office job from home will notice I will randomly fall asleep which obviously isn't ideal to maintain a job haha. Curious if this is what I can expect for the rest of my life or gets better. Currently on a break from all treatment but will start back on 7/14 with Dara/Rev. Dread that adding to the fatigue as well.