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MacGaranny
Multiple Myeloma Discussion • July 9, 2025
Managing Relapse Anxiety and Caregiver Emotions
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Uncertainties in regards to treatments when this sneaky monster pops back up cause so much anxiety. And the dynamics between the caregiver and the person who has the meyloma are so emotional. Ugh.
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Gerii2002
Multiple Myeloma Discussion • July 9, 2025
Managing Pain & Bowels on Watch and Wait?
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Hi, I have eye issues too! I am so affarid to get it done! I am not on Medcine yet, it's kind of odd,, they find MM in bone marrow but it sits ! This is since 2016, yes I pray a lot and I believe God protects me, but will it just go away by itself?? The pain I go through kills me, and the bowels are horrible, do you have issue with bowels? Everything I eat just comes out and yet I can't eat!!! I go for my check up on Friday, I will ask him again. Be
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Jenny
Multiple Myeloma Discussion • July 8, 2025
Connecting With Caregivers About ASCT?
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Hi, My partner will be undergoing the autologous stem cell transplant and I wondered if there are some caregivers out here to connect with. It’s all coming so fast and I would like to know what it’s been like caregiving and keeping everything safe. Thanks
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MolliesMan
Multiple Myeloma Discussion • July 8, 2025
Continuing Acyclovir During Maintenance?
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Hi. I. am 82 and was diagnosed MM in Feb 2025. I have since completed 8 infusions of Darzalex, Dexamethasone and Difenhydramine and took oral Revlimid 10mg 21/7. My doctor also initially put me on Acyclovir twice daily. Now, after the initial 8 treatments, my infusions have been set for a month apart ...same meds. My question: has anyone else had to continue taking the Acyclovir BID during the non-treatment days/weeks? My doctor postponed our last meeting, so I hope to see him on 7/10 to ask this and other newbie questions.
Thumbnail for Using Immune Profiling to Better Understand CAR-T Cell Response | Theresia Akhlaghi, MD | ASCO YIA
Playlist: EHA 2025

Using Immune Profiling to Better Understand CAR-T Cell Response | Theresia Akhlaghi, MD | ASCO YIA

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bronzeMouse
Multiple Myeloma Discussion • July 7, 2025
ABBV 383: Sharing Experiences?
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I was offered ABBV 383 treatment after the second relapse . Can anyone share their experience ? What do I need to be aware of ? Thanks
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sarahrfthompson
Multiple Myeloma Discussion • July 7, 2025
Young with MM & Amyloidosis: Seeking Advice?
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I am 36 years old and recently diagnosed with MM with AL Amyloidosis in March 2025 after experiencing swelling in my body and a bony lesion forming above my right eye. I started chemo (Darzalex Faspro + Cyclophosphamide + Velcade) in May 2025 and I receive it on a weekly basis. I’ve been told many times that I am not the typical demographic for this type of cancer and even more atypical because of the amyloidosis tacked on. I will likely have an ASCT at the end of this chemo regimen at the end of the year. Are there others who were diagnosed at a younger age and/or with amyloidosis? What has helped you throughout your journey, personally and work-wise? Mine is just getting started and I’m experiencing all kinds of highs and lows…while also maintaining a full-time career as a CPA.