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Linda
Multiple Myeloma Discussion • July 7, 2025
Considering a Maintenance Break with 1q Gain?
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Has anyone in the group who is IgG Kappa with a 1q gain who has had a ASCT opted to take a break from maintenance meds? The ASCT was in Dec of 2023. Then Darzelex for 18 months. Thanks for any feedback.
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MM2022
Multiple Myeloma Discussion • July 6, 2025
My Carvykti Journey: Day 14 Update
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Day 14 Carvikti. Was treated on Day 7 with tocilizumab for CRS. I'm workng on overcoming weak appetite and eating issues by using high protein drinks and soups, along with yogurt and milkshakes. I'm looking forward to labs tomorrow to learn how my whites and reds are doing. Basically, I think my Carvikti is fairly typical so far.
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Debbie
Multiple Myeloma Discussion • July 6, 2025
Trying a Grounding Mat for Neuropathy?
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I hope everyone had a good 4th of July. Has anyone tried a grounding mat to help with neuropathy? Thank you for any input. Mske it a great day!’
Thumbnail for Understanding Prolonged Low Blood Counts After CAR-T Therapy |Zachary Avigan, MD | ASCO YIA
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Understanding Prolonged Low Blood Counts After CAR-T Therapy |Zachary Avigan, MD | ASCO YIA

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Anne66
Multiple Myeloma Discussion • July 6, 2025
Experiences With Isa-Kd Treatment?
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Hi I will be starting a new treatment soon called Isa KD Isatuximab Carfilzomib and Dexamethasone. I am out of remission from my Stem Cell transplant after only 2 1/2 years, so I’ve been classed as high risk. I’m feeling very down about this treatment as it’s an every week transfusion for a while then every week for 3 weeks with a week off. I live in Canada so treatments may be different here, has anyone had this treatment? And what was your experience. I would be grateful for any information. Thank you
Thumbnail for Using Evolving Biomarkers to ID High-Risk SMM-a Dynamic Model | Theresia Akhlaghi, MD| EHA25
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Using Evolving Biomarkers to ID High-Risk SMM-a Dynamic Model | Theresia Akhlaghi, MD| EHA25

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