Hello Community, I am just about to begin the lympho-depleting chemo for Car T. I am diagnosed with MM since 2019 and just recently had an in-patient stem cell transplant as a bridge to my Car T, as my disease was so aggressive and relapsing constantly. I am 36 days post SCT and a little weary of going back into the hospital, but excited about finally getting Car T therapy and hoping to put these aggressive relapses behind me. Any advice for how I might fair well with this process? Thanks Brave Ones!

40/M diagnosed 5 years ago. MM in my lower spine. 2 rounds of radiation. Bout with chemo- KRD+Dara. Stem cell transplant a year ago. Ask away!!!

Greetings! Please join us for a live Webinar event. Beyond Standard of Care Treatment for Light Chain (AL) Amyloidosis: The Promise of Tomorrow Presented by Heather Landau, MD Tuesday, September 26, 2023 3:00 PM ET Register here: https://www.pathlms.com/amyloidosis/webinars/36919 Heather Landau, MD, is a hematologist-oncologist and the Director of the Amyloid Program at Memorial Sloan Kettering (MSK) Cancer Center focused on increasing access to novel, effective therapies in AL amyloidosis and has investigated drugs at all stages of development. She has conducted multiple investigator-initiated clinical trials exploring novel agents and approaches, including consolidation and maintenance strategies in high-risk patients. She led the development of MSK’s Outpatient Transplant Service and is studying innovative ways to optimize high-dose therapy and transplant care. Pharmacokinetically dosed conditioning has the potential to truly personalize high-dose therapy and Dr. Landau has shown that delivering transplant care at home is safe and improves the quality of life and satisfaction of patients and caregivers.

HI! Anyone been told how long to wait after having covid to resume treatment? It's highly possible that due to my white blood cells going low after starting POM, I got covid:( Afraid it might rebound if I restart too soon tho did restart on the Dara and doing better with my back.

Hello everyone! This is my first post on HealthTree Connect. Does anyone know of myeloma specialist in the country that is also a heart specialist? They might be a Cardio-Oncologist... What is a Cardio-Oncologist? Cardio-oncology is a new field in cardiology. Cardio-oncologists are typically cardiologists who see cancer survivors or patients getting cancer treatment who develop side effects that affect the heart. Cardio-oncologists have a special interest in and knowledge about cardiac side effects of chemotherapy, targeted therapy and radiation to treat cancer. Since it is a fairly new field in cardiology, many U.S. cities do not yet have cardio-oncologists. https://www.cardiosmart.org/topics/cancer-treatment-and-your-heart/what-is-a-cardio-oncologist

Hello. Was just diagnosed with POEMS syndrome and struggling to find others to connect with, and there seems to be very little patient centered information. Does anyone have a group to suggest? Thanks.