I am scheduled to receive my CAR-T infusion (CARVYKTI) on September 18. Beyond the legal disclosures, my oncologist has not been very forthcoming about the side effects that I should anticipate. I have looked at the information offered on the Janssen website. That is only slightly better than what I have received from my oncologist.The Janssen site lists everything and warns that many of them can be fatal (even if that is highly unlikely) - it appears to have been created with strong direction from their Legal Department and/or the FDA. I do understand that the side effects can vary tremendously from one patient to another. However, I would **REALLY** like to understand which ones are most common and how long they are likely to last. Any input from folks in this group would be greatly appreciated. Any tips for dealing with the side effects? Any advice for getting through the first month when I am supposed to have someone with me 24/7? That duty will fall to my wife, with the possible exception of a couple of times when a friend or family member might relieve her. Any things that you recommend doing in advance (e.g., stocking up on groceries, having a date night, etc.)? Thanks

Has anyone had experience with ‘parkinsonian’ symptoms (such as hand tremors, lack of expression, unnatural and slow movements, neurological deficits, low engagement) post car T? My mother has been experiencing these symptoms; they started around day +30 post Carvykti. Her treatment plan started with Dexamethasone + Anakinra, followed by a dose of Cytoxan when she did not show enough improvement. We saw some positive changes on the day she received Cytoxan, but progress has slowed. We are waiting and hoping she continues to improve. Has anybody had any similar experience with this? Would really appreciate any information. Thank you!

Joint Pain ? Specifically elbows ? On 15mg daily revlimid. Elbows are sore - often.

I'm headed for a CAR T with the Lummicare trial...wondering if anyone here has gone thru it already..