I'm looking for people who have Myelofibrosis and have had any surgeries done. I have MF2 & have my estimated life expectancy is 3 years. I have a back problem where nerves are being compressed and causing my left leg to hurt like crazy when I'm on it for more than a few minutes. So far I've been able to get some relief from spinal ablation but it's not working like it used to. In the last 5 months my right hip has deteriorated to the point of extreme pain and needing a hip replacement. My Dr. tells me that I am at an extremely high risk of having a stroke or getting a blood clot if I have a surgery to correct either condition. My question is, has anyone on this board with MF had a surgery and how did it go?

I'm looking for people who have Myelofibrosis and have had any surgeries done. I have MF2 & have my estimated life expectancy is 3 years. I have a back problem where nerves are being compressed and causing my left leg to hurt like crazy when I'm on it for more than a few minutes. So far I've been able to get some relief from spinal ablation but it's not working like it used to. In the last 5 months my right hip has deteriorated to the point of extreme pain and needing a hip replacement. My Dr. tells me that I am at an extremely high risk of having a stroke or getting a blood clot if I have a surgery to correct either condition. My question is, has anyone on this board with MF had a surgery and how did it go?

Hi everyone! I hope you all are well. This year, HealthTree Foundation is expanding our efforts to support CMML patients through education, community-building, and patient-driven research. As we develop these programs, it’s essential that we incorporate the patient voice every step of the way. I’d love the opportunity to connect with you for a 30-minute video call in the next week or two to hear more about you and your experience with CMML. Your insights will play a crucial role in shaping our programs to truly reflect the needs and priorities of CMML patients. Please let me know if you would be open to this, and we can find a time that works for your schedule. I truly value each of your perspectives and would be honored to have the chance to learn from you. Hope to hear from you! Katie Braswell Director of Patient Education at HealthTree Foundation

I am in need of a stem cell transplant but found out recently that I have a hip that needs to be replaced. I need a cane to walk and use a wheelchair if I'm traveling any distance. Does anyone know of someone who's had a ASCT in this condition?

Does anyone know if people who are over 65 years old and in a wheelchair can be a viable candidate for an allogenic stem cell transplant?

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams