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Kimbo123
Chronic Myelomonocytic Leukemia Discussion • August 2, 2025
Sharing Experiences on Watch & Wait with Symptoms?
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Hi I have been recently diagnosed with CMML-2 and possibly A T-cell leukemia. I am looking for support and others take on their experience with this disease. I am not being treated at this time I have been told that it is not aggressive. I really don’t understand the criteria but I am hoping for more information from my new Dr. soon. I feel horrible most days with significant fatigue and bone pain in my thighs and lower back. I have low low neutrophils, low platelets, WBC, and RBC. I also have high MPV and MO. I only have 1 mutation which is a high % TET2. Due to this I have been placed on wait and watch. I have a significant amount of anxiety. If you don’t mind sharing your story I am very interested in learning all I can. Thank you
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SALVATORE
Myelofibrosis Discussion • July 29, 2025
Coping With Metallic Taste Post-SCT?
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Hi, Hope all is going well. I had my SCT on July 08th, I’m +21 days. My question is “How long does the metallic taste last?” I cannot eat anything. Any help would be appreciated. Thank You Sal. L
Thumbnail for Single-agent selinixor vs physicians choice in #myelofibrosis | Alessandro Lucchesi, MD | EHA 2025
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Single-agent selinixor vs physicians choice in #myelofibrosis | Alessandro Lucchesi, MD | EHA 2025

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