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MikeW
Multiple Myeloma Discussion • June 29, 2025
Heart PVCs After ASCT: Anyone Else?
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I’m 3 years post ASCT, and recently been diagnosed with cardiac PVC’s at 26% and will undergo a cardiac ablation in the coming weeks. Have others that have cone through MM treatments experienced the same??
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Mallorylee7
Multiple Myeloma Discussion • June 28, 2025
Managing Migraines on Quad Treatment?
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Hi, I am not a patient, however, my dad was diagnosed with M M in March. He is in his final week of his quad treatment, and for the most part has done very well. However, he has been experiencing migraines for the last two weeks. They are progressively getting more frequent and are debilitating. His local oncologist prescribed him Sumatriptan which helps for a little while, but they come back. He also scheduled him to have an MRI this week. Has anyone experienced this with the quad treatment? Does anybody have any recommendations for something else that can be prescribed to him? He does not meet with his specialist at city of Hope until July 8 and his local oncologist is on vacation for a week. His primary care doctor will not prescribe him anything because of his treatment. Thank you in advance!
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JohnEustace
Multiple Myeloma Discussion • June 28, 2025
Myeloma Minutes Podcast: New Schedule
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Those of us awaiting a new episode of themyelomaminutes.podbean.com I have news! Jam and Sally have decided to publish every other week. So 14 should be with us next Thursday. hnPlease look out for it and tell others Jo
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Gebharka
Multiple Myeloma Discussion • June 28, 2025
Question: Does No M-Protein Mean Remission?
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I was diagnosed with MM in 2018 stage 4. I started chemo and velcade. Didn't get Stem Cell because soon after I was diagnosed Covid started. So after a year and a half I was reduced to only Remicade (pill form) now I am told I am in remission because there are M-protien showing in my blood work ( also must add this is my 3rd doctor in this practice, due to alot of the doctors leaving this practice. I am starting to not feel comfortable anymore. So is it true that if there are no M-protien that you are in remission?
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redRhinoceros
Multiple Myeloma Discussion • June 27, 2025
Increasing Dara on Maintenance: Any Success?
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I've been on daratumumab maintenace for 2 years after reaching CR. I receive dara every 8 weeks and just recently had a bone marrow biopsy which showed no plasma cells in the marrow but my clonal cells have increased from 800 to 5,000 per million. I will be asking my oncologist to increase dara to every 4 weeks. Has anyone had a similar experience of increasing dara during the maintenance phase and seeing improved results? The other option will be to add on pomalyst but I'm hoping to stick with dara only for a while.
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Lindak
Multiple Myeloma Discussion • June 26, 2025
Tips for Managing Anemia with MDS?
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Hi. I was recently diagnosed with MDS with Anemia. My doctor is monitoring my hemoglobin and will start injections with hormones if it drops below a certain level. I want to learn all I can do I can be prepared if necessary. I read that MDS typically is found in patients 60 years of age or older. But I had a second cousin who died from this when she was 26. There is a lot of cancer on my Mom's side of the family. I want to know what I can do for the anemia. If anyone has any suggestions please reach out to me. I plan on attending the session at UCF on Saturday. Linda