Has anyone ever had pleural fluid analyzed and it shows mpe? My research shows Darzalex can cause this?

Medicare Advantage plan participants should be aware of upcoming changes and reach out to their plans. "UnitedHealthcare, Humana and Aetna are eliminating unprofitable Medicare Advantage plans, exiting unprofitable markets and scaling back benefits, and Cigna, Premera Blue Cross and others are exiting the MA business entirely. Insurers are also raising premiums and reducing broker commissions as they struggle to adapt to a new risk adjustment model, according to Brooks Conway at Oliver Wyman. A million or more MA subscribers may be affected and may have to find a new plan, switch to conventional Medicare or find in-network health care providers." MedCity News If assistance is needed, please reach out to Healthtree and ask for a financial coach.

My husband is 3 1/2 years into IgG Lambda light chain MM treatment by a myeloma specialist at a notable cancer (all types) center in California. We're looking for a doctor who relies not only on the science but also on situational analysis and personal judgment. Where can we go to find out how many MM patients a specialist actually treats? Hematologist-Oncologists treat a number of blood diseases and their practice may include only a handfull, at best, of MM patients. We're on a hunt for 1) a specialist who treats as many MM patients as possible and 2) a specialist who is interested enough in patient side effects to use the available tools to mitigate them based on patient status, not on a standardized protocol. We are able to relocate anywhere in the US. We would settle for a specialist with only a few MM patients who is proactive about using IVIG, blood transfusions, medications and blood building methods. After 5 hospital admissions for pneumonia the first year of treatment none of these were offered. When we asked for IVIG it was refused because my husband wasn't sick enough based on a standardized protocol. Please note: We are not looking for a 'nice' doctor. Ours is nice enough. We are looking for an interest and willingness to do what's best for the patient in side effect management. Do you have a personal experience with a MM Hematologist-Oncologist who thinks outside the standard protocol box and is proactive in terms of managing actual and predictable side effects? Many thanks for your comments.

Did You Know About NORD? 🤔 The National Organization of Rare Diseases (NORD) offers incredible support to individuals and families affected by RARE diseases, often providing crucial copay assistance! Many aren't aware of the amazing benefits they offer, like helping with the costs of medications for Copay Assistance. NORD covers a wide range of rare conditions, including: AL Amyloidosis POEMS Syndrome Gaucher Disease Cystic Fibrosis And many more! If you or someone you know is living with a rare disease, exploring NORD's resources could be a game-changer. They provide valuable assistance and support. ➡️ Check them out at rarediseases.org!

Has anyone experienced issues with dry eyes following CarT therapy?

CPR Funds Now Open: Metastatic Colorectal Cancer, Multiple Myeloma, Pancreatic Cancer The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://portal.copays.org/#/login, with access available for patients, providers, and pharmacies. PAF on Facebook CPR Website PAF YouTube Channel Copyright © 2025 Patient Advocate Foundation, All rights reserved. You signed up for this list in order to receive messages, newsletters, event announcements and other relevant information from Patient Advocate Foundation. Our mailing address is: Patient Advocate Foundation 421 Butler Farm Road Hampton, VA 23666 Add us to your address book Want to change how you receive these emails? You can update your preferences or unsubscribe from this list.

CPR Funds Now Open: Metastatic Colorectal Cancer, Multiple Myeloma, Pancreatic Cancer The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://portal.copays.org/#/login, with access available for patients, providers, and pharmacies. PAF on Facebook CPR Website PAF YouTube Channel Copyright © 2025 Patient Advocate Foundation, All rights reserved. You signed up for this list in order to receive messages, newsletters, event announcements and other relevant information from Patient Advocate Foundation. Our mailing address is: Patient Advocate Foundation 421 Butler Farm Road Hampton, VA 23666 Add us to your address book Want to change how you receive these emails? You can update your preferences or unsubscribe from this list.

I was diagnosed with IgG lambda smoldering multiple myeloma a year ago, after being followed for seven years with MGUS. BMB report said standard risk of progression for SMM, but high risk MM. I've been seeing a general oncologist for the last year, and am going for a second opinion with a myeloma specialist at Roswell Park. I'm 58, very close to the age my grandmother was when diagnosed with MM, but I have no known genetic cancer markers. I'm looking for suggestions on questions I should ask during my visit.

Anyone else with MM + AL?

I just got my immunofixation report back and this is what it says. mmunofixation: There is a trace IgG kappa band in the gamma region with co-migrating lambda light chain Note: The trace IgG kappa's electrophoretic migration is similar to the therapeutic Daratumumab. Everything is the same except the co migrating lambda light chain. What does this mean.? I have IGG Kappa myeloma. And I am on darazalex.

Is there anyone here that has a dual diagnosis of MM and ALS? I think it is pretty rare, but I have a support group member that has been diagnosed with both. Thanks,