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Isaac
Multiple Myeloma Discussion • October 2, 2025
Carvykti (CAR-T) Experiences: What to Expect?
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Hello, if you've had Car-T (Carvykti) can you please share your experience with me?🙏 My Myeloma specialist is scheduling me for it, but I don't know what to expect. I had autologous stem cell transplant in September 2024, and relapsed one year later last month. My oncologist insists on Car-T as my only next option to help me buy me longer time. How did you feel when you had Car-T, what were some of the side effects, how long did it take to recover, do you ever feel normal again? I look forward to hearing about your experience, thank you 🙏
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Iliana • Admin
Multiple Myeloma Discussion • October 1, 2025
Help Us Take the Next Step Toward a Cure
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💚 Thanks to your participation, we completed the Tree of Hope! We’re deeply grateful for every name shared. Now, by also sharing your records, together we can bring hope closer and move toward a cure. 🌳 Our Tree of Hope grew with every name shared; patients, caregivers, and doctors standing side by side to create something bigger than ourselves. 👉 Be part of the cure: https://htree.org/takecontrolofyourhealth 🩸 As we close Blood Cancer Awareness Month, we honor the strength of our community. From EDUCATION that empowers patients with knowledge and COMMUNITY that brings comfort, to tools that help you TAKE CONTROL of your care and ADVANCING CURES TOGETHER, this month has been about more than awareness. It’s been about ACTION. ✨ At HealthTree, we believe that within the greatest adversity exists the greatest potential for doing good. REMEMBER: Together We Care. Together We Cure. THANK YOU!!!
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XimenaG • Admin
Multiple Myeloma Discussion • October 1, 2025
Join Our Honolulu Marathon Charity Team
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🌺 Run Paradise. Save Lives. 🌺 HealthTree is proud to be an official charity partner of the 2025 Honolulu Marathon! You can join our inaugural VIP Charity Team, or invite a friend or family member to take on this inspiring challenge to help bring hope and progress to blood cancer patients everywhere. 🏃‍♀️💚 Why join? ✔️ Low fundraising minimum ✔️ Personalized training & fundraising support ✔️ No race time limit ✔️ An unforgettable race in paradise Every mile you run helps make a difference for blood cancer patients. ✨ Spots are limited, secure yours today! 👉 Register here: https://give.healthtree.org/event/honolulu-marathon/e710342?c_src=socialmediaorganic If you have any questions or need more information, please contact support@healthtree.org
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XimenaG • Admin
Multiple Myeloma Discussion • October 1, 2025
Run for MM in Paradise: Join Our Team
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🌺 Run Paradise. Save Lives. 🌺 HealthTree is proud to be an official charity partner of the 2025 Honolulu Marathon! You can join our inaugural VIP Charity Team, or invite a friend or family member to take on this inspiring challenge to help bring hope and progress to blood cancer patients everywhere. 🏃‍♀️💚 Why join? ✔️ Low fundraising minimum ✔️ Personalized training & fundraising support ✔️ No race time limit ✔️ An unforgettable race in paradise Every mile you run helps make a difference for blood cancer patients. ✨ Spots are limited, secure yours today! 👉 Register here: https://give.healthtree.org/event/honolulu-marathon/e710342?c_src=socialmediaorganic If you have any questions or need more information, please contact support@healthtree.org
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DIahanna • Admin
Multiple Myeloma Discussion • September 30, 2025
A Tip for Managing Social Security Payments
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Be aware that the Social Security Department will no longer be sending out physical checks. You need to have a account for it to be deposited. This is effective today. Sept. 30th
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PatsyCare
Multiple Myeloma Discussion • September 29, 2025
Managing Side Effects On Revlimid Maintenance?
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I’m my daughter’s caregiver and concerned that she is experiencing the same symptoms of MM after her SCT in May of this year. She started her first round of 5 mg Revlimid (on 21 days off 7 days). Prior to commencing Revlimid she was feeling pretty good with no MM symptoms. However, since starting the drug she’s experiencing extreme sweats, breathlessness and fatigue. Any advice and comments would be very much appreciated.
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Rosieg1
Multiple Myeloma Discussion • September 29, 2025
Experiencing a Reaction to Gammunex-C?
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Hi has anyone experienced an allergic reaction to Gammunex c? I had a pretty bad reaction at my last infusion hives, heart rate went up to 135 BP went up to 145 over 83 which is high for me (norm is around 98 over 70) i found out later that the pharmacy said it was a "Bad lot number " and therefore they were throwing out that batch. Uuuggg. Im still experiencing palpitations 5 days later. Has anyone had Gammunex c? I looked up their website and it looks like they've had this problem
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GratefulGrit
Multiple Myeloma Discussion • September 28, 2025
Medicare Plan G Check-In for 2026?
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I have traditional Medicare with AARP Medicare Supplement Plan G and Wellcare for a drug plan. So far, this combination has served me well. For 2026, besides rates increases, do I need to make any adjustments/changes?