I have ckd 3a. My pc told me I can improve kidney function by switching to decaf. 1. Is there a difference in flavor between reg and decaf black tea? 2. Anyone that has switched noticed an improvement?

I was diagnosed with IgA  kappa  multiple  myeloma Ultra high  risk about 9 months ago. Due to the severity of my back lesions, fractures etc. I am not a candidate for Kyphoplasty. Has anyone tried holistic treatments, acupuncture or massages of any kind to help w pain? Thanks

Does anyone have a severe headache after IVIG? I always get a headache 48 hours after treatment Some months are mild, some are very bad. Just wondering if it is normal.

I'm in my 4th cycle of Dara KRD and I suddenly developed very swollen feet at the end of cycle 3. I had a doppler done which ruled out blood clots. Then i had my week off (fourth week of cycle) and the swelling resolved. My oncologist at MSK reduced my dex to 20 mg from 40mg. However after starting Cycle 4, the swelling returned but this time with so much pain in my right ankle up to six inches above that. walking with a limp. So at symptomatic care, they performed an x ray and another doppler which were normal. My doctor called in Lasix 20 mg to take for three days, Has anyone on this therapy had similar experiences and were you and the team able to figure out if it was the dex causing the pain as well or was it carfizomib?

$8000 award. Assistance Type: Prescription Drug Copay or Insurance premium (Medicare Part B only). https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/

$8000 award. Assistance Type: Prescription Drug Copay or Insurance premium (Medicare Part B only). https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/

Back in 2024, I indicated that I was interested in joining the study being conducted by Dr. Ola Landgren at the University of Miami titled "Personalized treatment strategies based on genetics at diagnosis". Then in 2025, I indicated that I was interested in joining a study being done by Predicta Biosciences on a new non-invasive blood test. My question is: Are these two studies related? Can I be in one of them and not the other?

Has anyone experienced facility fees for PET scans? I've just noticed this charge for a PET done last September. With the amount of money cancer centers are receiving for treatment it seems this fee is truly unfair especially if you have reached your maximum out of pocket limit. I should mention the facility I use is MSKCC. With regard to this PET scan, I had not reached the out of pocket max so my bill is $3600 for the PET plus $345 facility fee. For 2026, since I have already reached the maximum would any coming PET also incur this fee? I'm sure this is not sitting well with patients. Any experiences with this are welcome to be shared.

I will be having my T cells collected on the 23. Car t in April. I would like to hear from other people who have been through this process.

HealthTree Foundation, in collaboration with Mayo Clinic researchers, is conducting an observational survey to better understand how smoldering multiple myeloma (SMM) is monitored and treated in real-world settings. If you are 18+ with a history of SMM (whether or not it has progressed), your experience matters. The 10-minute survey is voluntary, confidential, and designed to help improve insights for the SMM community. Participate here: https://htree.org/yoursmolderingmyelomajourney Questions? email support@healthtree.org or call 800-709-1113

We’ve started a new series of smaller community gatherings and would love anyone living with Non-Secretory Myeloma to join our Non-Secretory Gather Community Event tomorrow. To help create a comfortable space for open conversation, these meetings are not recorded. We hope to see you at one of our Community Gather events soon! If you have Non-Secretory Myeloma and would like to attend, please register here: https://healthtree.org/myeloma/community/events/feb26-myeloma-non-secretory-gather-community

I've been on one chemo or another since my diagnosis of MM in 2011. SCT in 2016. Now in 2026 food tastes awful and I have no appetite. Is anyone else having this problem with food? I've lost 25 lbs. over the past year. My Dr. doesn't seem concerned. Peanut butter is the most recent casualty. Right up until a few weeks ago It was one of the few things left I liked, but now it just tastes off. Horseradish sauce, butterscotch pudding and cinnamon rolls are still good.

Is it safe for myeloma patients to take melatonin as a sleep aid. I have heard conflicting points of view.

I had a bone marrow biopsy last Wednesday and just saw the results in my chart. I see the Dr on Feb 18. It looks like I am MRD-. Which is wonderful, however I am nervous about going off of the Lenalidomide 10 mg 21 days. I have been on this maintenance for three years starting after my stem cell transplant. I am ready for a break but feeling a bit overwhelmed with stopping. Wondering if anyone else has experienced this and how they are doing? Thanks for any input!!!

Can you get side effects six months later from Car-t I heard even a year later As anyone experienced this???

Has anyone had a stem cell boost after Cart t-cell therapy for bone marrow failure? G-CSF shots haven’t worked to boost neutrophils.