A friend of mine on east coast was recently diagnosed with myeloma and would like to see a myeloma specialist at Dana-Farber or Memorial Sloan Kettering. I told him that I would ask if you have any recommendations for myeloma specialists at either of these organizations. I’d appreciate any names that I can pass along. Thanks!

Hi all, so i had a sct in December 2024, It didnt work unfortunately so I started treatment again the folling June 2024 and have been doing well on weekly treatment since with my number all in range, last week my period came back after 15 months and I was full sure I had gone or was in the pre menopause I had all the symptoms hot flushes, bad night sweats, and now they are all gone, has this hap o ended to anyone else? Im waiting on a referral from a gynaecologist, im just curious for anyone else, im now 38

Preparing to start on a clinical trial at U of Penn. It is a new trial with Bispecific antibody Elranatamab (Elrexfio) and investigational drug Inobrodib (CCS1477). Is there anyone out there that is in this trial or anyone on one of these drugs and if so how is it going (response/side effect profile). The Bispecific is commercially available.

Join the conversation about MRD in multiple myeloma. 🩸 The 13th Annual Miami Myeloma MRD Meeting 2026 will bring together leading experts to share the latest research and insights on Minimal Residual Disease and its role in advancing myeloma care. If you're interested in MRD or following the latest updates in myeloma research, this is a great opportunity to learn and discuss with others in the community. 🗓️ April 10, 2026 ⏰ 7:30 AM – 5:30 PM ET 📍 Miami, FL | Virtual access available https://healthtree.org/myeloma/community/events/apr26-miami-myeloma-mrd-2026?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Does anyone know of soaps (dish and body) for very dry hands from neuropathy?

Recently, one of my friends explained me the concept of autophagy and its affect on auto immune diseases. Did a 3 days of water fasting snd felt very good. I am planning to do it every month going forward. Does any one here do practice this? Any experience good or bad is appreciated.

Not sure if this really belongs here, but as of Jan 1, 2026 quantity restrictions were supposedly removed from the generic manufacturers of lenalidomide. I have medicare part D and the price that Onco360 billed medicare was exactly the same in December and January at $9973.76 for 15 mg strength and 14 day supply. I called some other pharmacies and AcariaHealth said the cost was $13,128 for 15 mg for 14 days. AllianceRx said their price w/o insurance was $11,774.30. They mentioned Health Well Grand assistance and co pay assistance. I can't promise that the price info from AcariaHealth is accurate as they may have not understood about the strength and no of days. If you haven't see it this article is worth reading. https://www.propublica.org/article/revlimid-price-cancer-celgene-drugs-fda-multiple-myeloma If you are so inclined feel free to share what you are paying for lenilidomide in case we can steer our prescribing oncologists to use the lowest cost pharmacies.

Looking for information on Arlocabtagene Autoleucel BMS-986393) a GPRCD- directed Cart - T Cell Therapy.

Anyone else currently on Elrexfio or have had Elrexfio as either treatment plan or bridging or maintenance?

Has anyone here had CAR-T therapy? I’d be grateful to hear about your experience - how successful it was and how long ago you had the treatment.

I'd be interested to know from those of you who have taken selinexor (Xpovio). What did you take it in combination with? Was it effective in controlling your myeloma? What were the major side effects you experienced? Thanks!