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Caregiver
Multiple Myeloma Discussion • June 22
MM TP 53 (del 17)
My husband was diagnosed with MM TP53 (del 17) in March 2025. The MM also deleted other chromosomes. He was on Velcade from April 2025 - November 2025 and was taken off it because of the acute pneumonitis it caused. He was in the hospital every month with acute pneumonitis. In November, my husband had pneumonia and the Oncologist stopped Velcade. The Oncologist tried Revlimid, but my husband had a severe reaction to it and the the Oncologist stopped it. Since March 2025, my husband has been on Darzalex and seems to tolerate it. He has received chemo treatments for 15 months and his Oncologist ordered 5 more months of Darzalex. The Oncologist explained that a stem cell transplant was not possible because of the kidney damage caused by his MM. He had healthy kidneys until March 2025. He is now in Stage 4 renal disease. Do you know of foods which fight TP 53 (del 17)?
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Jean2024
Multiple Myeloma Discussion • June 21
ANNUAL PETSCANS and BLOOD WORK
Does anyone know if there is financial assistance with payments for bloodwork (every 3 months) and the balance for the Annual PET SCANS? My insurance covers quite a chunk for both, however, as we all know it is still a pretty large balance owed for these processes. I am okay with my prescriptions for now as my current insurance covers majority of this. Any knowledge on this will help. Thank you Jeannie
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Bonniefac1
Multiple Myeloma Discussion • June 18
Velcade post transplant to deal with residual myeloma
I am writing to ask if anyone has had the experience of Velcade plateauing (your M-Spike) during Induction treatment and then post stem cell during Monthly Maintenance having it knock out residual myeloma? Thank you!