Black Voices in Clinical Research

Event Description
Join us for an inspiring panel of Black patients who have participated in clinical research. They'll share their real-life experiences—the challenges, the breakthroughs, and why representation in research matters. This candid conversation will explore what it truly means to be part of medical research as a Black participant, how trust is built, and the impact their involvement is making in advancing equitable healthcare.
Schedule & Agenda

Valarie introduces the agenda of the event and our featured speakers Joan, Rich and Zaneta.

Valarie introduces the agenda of the event and our featured speakers Joan, Rich and Zaneta.
This inspiring panel of Black patients share their real-life experiences.
This inspiring panel of Black patients share their real-life experiences.
Type your questions in the chat and we will answer them!
Type your questions in the chat and we will answer them!
Speakers & Moderators

Valarie embarked on her myeloma journey back in 2015, and ever since she's been on a mission. As a resilient myeloma thriver, her passion lies in not just navigating her own path but also in illuminating the journey for others. With a steadfast commitment to understanding the intricacies of the disease, she champions education, shedding light on health inequities that often lurk in the shadows. Driven by a profound belief in fairness, Valarie tirelessly advocates for equitable access to top-tier healthcare, clinical trials, and tailored treatments. Her journey as a beacon of knowledge and support began when she assumed the role of a support group leader. Today, she continues to extend her hand as a myeloma coach, mentor angel, and the guiding force behind the Black Myeloma Health Community. Valarie's voice echoes far and wide as she fearlessly confronts the disparities faced by myeloma patients. Through collaborative efforts with healthcare providers, she strives to forge pathways to solutions, ensuring that every individual receives the care they deserve. Join Valarie on her journey of empowerment and advocacy as she lights the way toward a brighter, more equitable future in myeloma care.

Zaneta lives in the north Atlanta suburb area with her husband, two teenage sons and her mom lives with them also. She enjoys reading, music, and binge watching tv shows and movies. She was diagnosed with high risk smouldering Multiple Myeloma in 2021 after an emergency gallbladder surgery. She has recently completed a clinical trial for high risk smouldering MM patients at Emory Winship Cancer Institute in Atlanta. Zaneta's health journey continues as she strives for improved overall health and wellness. Although being a new participant to research panel discussions, Zaneta has always been passionate about providing insight and support to family and friends to ensure they receive a quality healthcare experience
In May 2021, after months of pain that forced him to question his will to live—and at the height of the COVID pandemic—Rich came within an inch of dying after being diagnosed with acute kidney failure caused by multiple myeloma. His kappa light chain level at diagnosis was over 43,000—far exceeding the normal range of between 3 and 19. Only through divine intervention, expert care from his hometown team at the University of Pennsylvania Medicine in Philadelphia, and the unwavering support of family and friends does he live today. Given his survival, Rich now finds purpose in helping others. He channels his energy into health, education, coaching, and advocacy.
Join the Conversation
This event is part of the Black Myeloma Health group in HealthTree Connect, a social media platform for people with blood cancer. If you want to connect with other patients and caregivers and talk about this topic, join HealthTree Connect.
Have Any Questions?
Thank you for your interest in the event. If you have any questions, we would love to help!
Feel free to give us a call or send us a message below.
Get In Touch With Us
1-800-709-1113
Support@healthtree.org





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