Hello. I am the caregiver for my husband with multiple myeloma. We, together with our Dr chose to do CAR-T. He had SCT 8 years ago & has been on revlimid. His M-Spike is rising, revlimid is not working any longer. CAR-T is, from what they tell us 1 & done, no maintenance & remission. I would love to hear, the honest truth, from anyone who has gone through this, & your experience, as caregiver & or patient. The side effects are scaring us………..

Good morning all. This is my 5 th year w/ MM. I have gone trough all the normal treatment availabilities suggested by renowned Oncologists at Dana Farber Boston and Sylvester Cancer Center in Miami. My last treatment was Elrexfio every other week with remarkable success results. Remission within 2 month. UNFORTUNATELY, this lasted only for another month w/ my Kappa Lightchain and M-Spike raising again. I am checking in at Dana Farber Brigham Women’s next week for. 10 day test to see if I can handle thee new recommend drug TALVEY. Does anyone have any experience with this drug? Thank you

I receive a benadryl with Darakex Faspro, Delcade and Lenalidomide. It takes about 2/12 hours to get the pre-meds and the injections. The worst part is that I then have to drive home (30 minutes) and I sleep the next ten hours because I am so sensitive to the Benadryl. Sometimes these appointments are at 10 AM and ruins the next 24 hours for me with fatigue and grogginess. Is the benadryl really necessary and/or do you have any advice for how to navigate? Requesting later appointments has already been tried - they are very busy and you "get what you get." Thanks for any thoughts.

Hi Everyone I'm a newbie here and wondering if anyone knows what my lab results mean= IgA lambda band visible =9.2g/linc Betaglobulin region IgG Kappa paraprotein visible =3.0g/l Not sure what all this means on a Protein Electrophoresis Lab Test? Thank you in advance for any help/advice on understanding these lab results.

I was wondering about anyone had cataract surgery and their feedbacks. I was diagnosed with MM in January 2024 and went through induction treatment of DVD. I did not have ASCT and now on maintenance care of revlimid 5mg 21days and monthly injection of Darzalex. My oncologist recommend I stop revlimid 2 weeks before and 2 weeks after surgery. My myeloma specialist at UCSF said that is not necessary. I appreciate your feedbacks.

What treatment were you on and for how long before maintenance if not doing an SCT (postponing)? I am continuing with DVR-d, I collected stem cells for future use if needed.

Has anyone from this group received Cart T ? If so please share your experience . I’ve been reading about the promising results of many but am wondering how the non secretory group have been doing . Thanks in advance !

Hello all. Is anyone a caregiver for someone having CAR-T treatment?

Have you tried Taij and Qigong yet? You may be surprised by what it can do for you. Here are a few sources that you can try out...have fun and let me know how it goes. Research and experience show that Taiji and Qigong practice: • Relieves tension and stress • Regulates blood pressure • Improves circulation • Decreases insomnia and pain • Benefits people suffering from stiffness and injuries • Helps facilitate proper digestion • Improves the functioning of the kidneys • Lowers blood cortisol levels • Supports pain management • Repairs stress-related injuries • Helps prevent osteoporosis