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Bill
Multiple Myeloma Discussion • November 12
Motixafortide
Has anyone used motixafortide as a mobilizing agent before stem cell collection? If so, could you tell me where you were treated? I had a “failed” collection last week (in my first line of treatment) and am trying to decide how/whether/where to try again. Thank you in advance.
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Chelle14
Multiple Myeloma Discussion • November 11
Dry Eye Neurotopic Keratitis
Good afternoon, I'm curious to hear if anyone has suffered with NK due to severe dry eye post diagnosis and SCT. I started with severe dry eye after my stem cell transplant. What I did not know is I also had NK, which muted the pain signals, kind of like neuropathy. I pushed through the blurred vision and light sensitivity, thinking dry eye is a benigne condition. When my vision became bad enough, that it was interfering with my work and quality of life, I sought out a dry eye specialist. I was immediately diagnosed with NK and told I was at high risk of losing my left eye. I had a Prokera placed that same day, which stayed on for a week. I then had a Prokera placed on my right eye the following week, and then another on my left the week after. All while waiting on an insurance approval for eye drops called Oxervate, which run $100k for an eight week supply. I am on week three of my treatment and have not noticed any improvements. I brought this up to my oncologist, but was told it is not related to my cancer or treatment. If anyone has had a similar experience or knows anyone that has, I would be interested to hear how you or they are doing. Thank you!
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DIahanna • Admin
Multiple Myeloma Discussion • November 11
ACA Subsidies
The Shut down has effecttively ended. The Affordable Care Act Subsidies will expire at the end of the year
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LETICIA
Multiple Myeloma Discussion • November 10
M spike ,
I have MGUS. How do I find my M Spike number. I am new to this community.
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Pmp777@gmail.com
Multiple Myeloma Discussion • November 10
Experiencing Loss of Sense on Talvey?
Im on Talvey and seem to have lost my sense of taste. Has anyone experienced this before and how long would it last for?
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XimenaG • Admin
Multiple Myeloma Discussion • November 9
Wall of Gratitude
💜 This November, let’s fill our community with gratitude! 💬 Share in the comments 1–3 words that express your love, admiration, or thanks for the caregivers who inspire you, whether it’s a family member, friend, or someone who has cared for you during your journey. Let’s fill this space with kindness, encouragement, and appreciation Thank you for your words!
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XimenaG • Admin
Multiple Myeloma Discussion • November 9
Wall of Gratitude
💜 This November, let’s fill our community with gratitude! 💬 Share in the comments 1–3 words that express your love, admiration, or thanks for the caregivers who inspire you, whether it’s a family member, friend, or someone who has cared for you during your journey. Let’s fill this space with kindness, encouragement, and appreciation Thank you for your words!
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Doricho
General Discussion • November 8
Time line to start maintenance post ASCT
I am in complete remission from IgA Kappa NDMM with a 1q gain scheduled to start 10mg Revlamid daily and monthly Dara Fastpro with Dex as a premed at 130 days post ASCT. Is it typical to start maintenance so soon?
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Positivity
Multiple Myeloma Discussion • November 8
Pain in arms after Autologous stemcell transplant
My husband had his ASCT on Aug 28th 2025. After 4weeks his bone pain started in his arms. His pain is more only at night. The doctor suggested for a radiation consult and they said it’s not necessary now. Any one has this experience and why radiation? We have an appointment with his oncologist later this month. Should we ask for a PET scan and is bone marrow biopsy required?
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DIahanna • Admin
Multiple Myeloma Discussion • November 7
Telehealth Challenges
Telehealth has practically completely gone away unless you are in a rural area. Accessibility has expired. The gov't shutdown has exacerbated the issue.
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Mango68
Multiple Myeloma Discussion • November 7
Swollen ankles
What is the best method to reduce swelling in my ankle?
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sapphireLlama
Multiple Myeloma Discussion • November 7
Teeth implant
Has anyone has had teeth implant while on multiple myeloma? I’m interesting about inthe healing process of teeth implant. I wanted to have one, but I’m kind of scared just in case it doesn’t heal properly. Any one ?????
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Iliana • Admin
Multiple Myeloma Discussion • November 6
Celebrating Our HealthTree Challenge Fundraisers
That’s a wrap on the 2025 HealthTree Challenge: Hike + Wellness Fundraiser for All Blood Cancers! 🏔️ This incredible team of 20 participants pushed themselves physically and mentally, raising vital funds to fuel blood cancer research. Huge thanks to our 2025 Challengers and their amazing supporters for believing in HealthTree’s mission. Inspired to continue making an impact? Meet our Challengers and support them in reaching their goals! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia Together We Care. Together We Cure.