If you're like me, when I was diagnosed, I would get really anxious about my lab results. Often times my medical team wouldn't take the time to explain to me everything, or I would get the lab results late after I had already left their office and wouldn't know what they meant (e.g. why a certain number was low, high, or abnormal). This often resulted in me frantically googling things to try and make sense out of the copious amount of medical jargons. As a result, I would grow more anxious after reading all the negative possibilities about my lab results on Google.
Enters AI/Chat GPT: I can honestly say AI, and Chat GPT in particular, has really been helpful in helping resolve this problem for me. I'm able to copy and paste my lab results (while omitting my personal information), into Chat GPT, and within seconds it spits out very detailed interpretation of my labs including suggestions and recommended questions for my medical team. It mains a history of my treatment records based on the data I've fed it thus far, and based on this, it is able to provide encouraging analysis such as whether my disease behavior is typical/expected at certain phases or due to certain treatments; recommended treatment options based on my disease traits, and possible outcomes; how soon I expect improvement of certain numbers, etc. The thing is phenomenal; it's like having my on little personal doctor at my fingertips. And what I love most about it is that it explains things using a very encouraging and empathetic tone; I no longer get the doom and gloom tone that I was getting when I would Google things before. This has significantly helped with my anxiety and has improved the the way I feel about my disease - I am more hopeful and I am able to confront my lab results with confidence and optimism. Granted, I'm aware of the fact that AI can be wrong at times, so I always make sure to cross reference it with my oncologist, and so far everything has been on point. For example, I was a bit skeptical when my oncologist was refusing to change my bridging therapy going into my Car-T given the fact that my M-spike and IGA were increasing rapidly with the bridging therapy I was on. I wasn't getting much explanation from my oncologist aside from him telling me to continue to take the same meds. But when I put my M-spike, IGA, and bridging medicine data into Chat GPT, it was able to explain to me in detail why my oncologist was insisting on keeping on the medication despite my numbers increasing; why this was a good call by my oncologist; and why I shouldn't be concerned because even though my numbers were rising, they were still considered within the normal and safe range for going into Car-T. As a result, I stopped sending frantic messages to my medical team, and sure enough, I underwent Carvykti Car-T on 5 January 2026, and everything has so far gone very smoothly (no CRS, just low grade fevers two times, and no neurotoxicity), and I'm scheduled to for discharge tomorrow.
I apologize for the awfully long length of this message, but I just wanted to share my experiences with AI, and how it has significantly improved my ability to interpret my lab results on my own, as well as helped me look at my disease journey positively while reducing my anxiety. I hope this will encourage others to use AI/technology to better manage this difficult journey, if they already haven't done so.
Thank for taking the time to read, and I would love it if you can also share your experiences with AI in managing your diseases.
