I had joined about 5 different groups. On this discussion but now the only one that shows up is newly diagnosed and others that I didn’t join. One I joined was relapse myeloma. Side effects Cant remember the rest but they aren’t there when I look at groups I’ve joined. Anyone else have this problem? Thank u

“I wanted to not only know what treatment options were available for my husband, but also to understand them.” As a myeloma caregiver, Ann Bailey found herself in a world she knew nothing about. She wasn’t just looking for data; she was looking for a way to make sense of the path ahead. By using HealthTree’s Cure Hub to track labs and explore options, Ann found what she describes as “an absolute gift.” It’s a tool that does more than show results; it eases the mind and helps caregivers ask the right questions during appointments. Watch her full story on the Myeloma Awareness Month page: htree.org/myelomaawarenessmonth2026

Has anyone experienced bad skin rash around the Velcade injection spot and elsewhere on the body ? If yes how did you manage ? I am on quadruplets induction therapy second month and I am experiencing pretty bad skin rash with Velcade. 1st month it went all over the abdomen and even under the armpits. We had to stop Velcade for 4 weeks … Second month - We slowed the injection pace and it helped contain the rash around the injection spot. Still after the 4th jab the skin rash has again migrated to the armpits… My haematologist was suggesting intravenous injection instead of subcutaneous… Would appreciate any feedback. Update - I now have done 2 - IV Velcade injection and so far all good 👍🏽. No skin rash .

Has anyone gained a lot of weight since the have been diagnosed with MM? My weight may be contributing to more bone pain. If so has it been discussed to use Zepbound or Wegovy to help lose weight? If you have been prescribed one of these which one and how did you do?

Hello, I was diagnosed in August of 25, with a solitary Plasmacytoma in the L2 vertebrae. Course of action was radiation. It was only 20% effective and doctors want to start doing treat all over. Do a new biopsy, follow up with new blood work and another PET Scan. It feels like we are wasting the next 2-3 months chasing after info they should already have. Anyone have a similar diagnosis with unresponsive radiation treatment and did a follow up treatment that resulted in remission?

I found this article on game theory and cancer treatment enlightening. It helped me reconcile my discomfort of thinking of this journey as a battle. Here's an excerpt: "Cancer is a strategic game. A cold, calculating, endlessly adaptive game played inside your own body by an opponent that does not sleep, does not negotiate in good faith, and has absolutely no concern for your retirement plans." https://nutmegphantasy.substack.com/p/this-might-help-explain-cancer-what?utm_source=share&utm_medium=android&r=1ecdop&triedRedirect=true

Anyone else out there?

Paraprotein and Kappa Lamda numbers are going up seeming that the Dara/pom/dex treatment is not working. No other health issues related to MM, so looking to make decisions about where to go from here.