Hello, I started relapsing after only 6 months post-SCT (which was last August (2023)). This is my second relapse since being diagnosed three years ago. At that time I was given Dara-RVD and then maintenance until I had my first relapse in March 2023. Will now be moving into CAR-T, changing up my medication as a bridge. Was wondering if there are any folks out there who relapsed early after SCT and what your journey has been like since? I have translocation 4:14, no other mutations. Am admittedly very worried about this.....thank you!

wondering if anyone here has any experience or insight with regard to kidney recovery during induction? Lambda light chain myeloma was diagnosed after my spouse's blood work showed creatinine levels 10x above normal range. He's just started his second cycle of CyBorD-D and his light chain number is way down, creatinine levels dropped by half but still very high. eGFR is improving but slowly. The nephrologist recommended a wait-and-see approach before starting dialysis. I can't get a clear sense regarding the likelihood and/or extent of kidney recovery

I am in remission (IgA MM) based on bone marrow results after my first 8 month round of Velcade-Darzalex-Dexamethasone-Revlamid. My biggest hurdles have been massive blood clots (saddle & all 5 lobes) in September 2023 for which an emergency thrombectomy was performed and I am now on Xarelto. I also had lumbar fractures & had 3 kyphoplasties in August 2023 which was miraculous & got rid of all of my pain. Now I am riddled with severe pain again with 3 new fractured thoracic vertebrae. It has been suggested to undergo surgery again with kyphoplasty. In looking at the rest of my spine it is riddled with lesions. Does anyone have experience in any alternate procedures that should be reviewed or information on kyphoplasty concerns? I am on Zometa IV monthly & Revlamid 10mg maintenance. I am hoping there is hope & progress for bone lesions.

Hello all If anyone is self administering velcade rather than visiting hospitals, please could you advice the storage technique for it? I am a little worried about it as I am not sure whether they should be refrigerated or not? Also it is summer time in India, 35-40 degrees are very common. Many thanks

Hello everyone I am just trying to understand any timeline for monoclonal protein to reach 0 or anything that should be kept in mind to know the efficacy of the treatment plan for newly diagnosed Multiple myeloma. My father's M protein came down from 2.85- 0.7 in 2.5 cycles so far. Should I consider this to be a good progress? Many thanks

Hello everyone, a few months ago I shared my mom’s situation, she was having a tough time in the hospital, she went through ICU and after a long process she’s finally back home. Her new treatment is KRD and her monoclonal protein went from 2.8 to 0.7 which is very good. She has been really well but recently like 3 days ago she started to have a hard pain in her buttock, but it is really intense and she feels like it’s in her bone. Has anyone had something related o maybe has an idea of it can be related to the chemotherapy?

I have smoldering IgG kappa light chain and I'm wondering if anyone has done anything to help keep it smoldering and not become active? I have heard that taking Curcumin 4 grams a day is helpful and a plant based diet is helpful. I have also read that EES therapy helps. What have those who have been successful at keeping your status as smoldering done? My heme onc hasn't recommended anything but I want to do as much as I can to keep it smoldering if possible. Any advice?

I recently had my blood tested for lipids. My total cholesterol was 187 but my LDL was 92. The cardiologist recommended I go on statins, which I wasn't expecting when I saw my total was well below 200., especially when in the past I was 210 to 220 regularly. My big concern about statins is side effects. Some of the most common are low platelets, pain, diarrhea, fatigue, mental fog, and leg cramps. I have all these now! I understand everyone is different, but am looking for some wisdom from those who have faced this decision or who were in my position and decided to go on statins. Am I being too overconcerned? Thanks!

I’m a few weeks in to maintenance with Lenolidamide 10 mg. Could a rash on tops of my hands be related? I experienced a rash on my torso when on 20mg Revlimid but went away when it was reduced to 15mg. Thank you!

Anyone using journaling applications? Recommendations (iOS/Mac)? We're using written notebooks and will continue to track conversations but I'm thinking I want it electronically to be able to index and search. Thanks!

I have MM and take Revlimid for maintenance therapy. My wife is worried about me shaking people's hands, hugging etc. anyone else have family members with these concerns?

Does anyone have family members who are worried about what could happen to them if they are exposed to Revlimid from touching, hugging etc. a MM patient?

Hi, Anyone undergone a PACE treatment before STC? How long the neutropenia lasts after the treatment? Thank you!