What are # of days people have taken to collect 5 million stem cells. I will be back for 3 day tomorrow. Current total is 4.11 million with fewer collected today than yesterday

Durante 5 meses del 2017 tuve toda clase de análisis. Mis médicos buscaban un cáncer primario que ocasionó la metástisis en mis huesos, hasta que por fin en Mayo del 2017 con un estudio de positrones el diagnóstico llegó: Mieloma Múltiple y a partir de ahí tuve 4 tratamientos diferentes, orientados a una remisión que me permitió realizar el transplante autólogo de médula ósea a finales del 2019. Dos años de mantenimiento con Lenalidomida, después un año sólo, con buenos niveles hasta que en Junio del 2023, regresó el Mieloma. A sido muy doloroso. El tratamiento con Daratumumab durante 5 meses fue una experiencia muy desgastante, mi cuerpo fue muy atacado, perdí 20 kilos, baje mi densidad y no se erradicó el Mieloma. Dos meses de descanso y a partir de Mayo del 2024 se inició otro tratamiento con Lena, Dexa y Carfilzomib. Después de dos ciclos de quimoterapia semanal, mi cuerpo ha sido más receptivo, no resiento tanto los efectos secundarios, estoy mejor. Espero realizar el tercer ciclo para los análisis y ver si ya se alcanza la remisión y no necesitar los seis ciclos. Tengo mucha confianza de que así será, después de todo con el diagnóstico inicial me dieron una expectativa de 36 meses de vida. Ya llevo 7 años, es decir, 84 meses y quiero tener otros 7, 14 y por qué no, 21 años más. A mis 65 años diagnosticado cuando tenía 58, ya pude conocer a 2 nietas y un nieto, quiero poder verlos crecer como hasta el momento. Espero con ansia la evaluación. Sólo comentar que aparte de mi médico hematóloga, no recibo apoyo o ayuda de nadie más, sólo de mi esposa que es mi cuidadora y las experiencias de personas que están en una situación parecida. Lo que ha sido determinante es la actitud, nunca desfallecer y tener mucha confianza en que vamos a superar este obstáculo, como hemos superado muchos otros. Luis Alberto Yamamoto Vergar

I was diagnosed in May 2016, started induction in June, received a Stem Cell Transplant in November, and then Revlimid maintenance throughout 2017. It returned in January 2018 and was in weekly infusion/injection treatments through December 2022 but these failed to reduce the Myeloma. I was at 95% myeloma when I decided to give CAR T Cell therapy in March of 2023, and it worked to put me in remission for one year. An entire year without chemo has been wonderful. But the reality is in my case, it comes back. Still, research for myeloma has advanced over the years and new treatments are available for relapsed myeloma. I gained some strength over the year I was in remission to keep going.

This book is dedicated to all my fellow cancer patients. NEVER give up! NEVER give in!! As I look back on the last three decades, I am the luckiest person on the face of the earth! Beating life-threatening brain surgery (twice), cancer (three times), and morbid obesity (only once, but it was a long hard fight) has taught me the true meaning of words persistence and relentless. For more, please visit us on the web at; https://www.amazon.com/dp/B08QRB3H3G Thanks, Keith 3X cancer survivor

Diagnosed January 2018. I am fortunate to be so well for so long. I have never been close to a partial or complete response but I keep going to chemo and taking revlimid and my numbers stay steady.

Hello everyone, diagnosed in 2020, SCT in 2021 and been in MRD since then.

I'm here for be a Multiple Myeloma patient since October 2019, have four months of treatments, and have a SCT -Auto in October 2020, since that date I'm in remission. My name is Jose Delacruz, Baton Rouge, Louisiana . I'm almost 71 years old

I was diagnosed February 2024. I am finishing my 4th month of induction and have been told my numbers look excellent. I have 2 more months if induction therapy but my shots now will be every other week. I will then harvest me stem cells and go on maintenance therapy. My body was in so much pain in February, but I am feeling so good now. I still have fatigue but I can deal with that and rest when I need to. My doctor said live your life and that’s just what I am starting to do

I was diagnosed in October of 2016. A real big shock to say the least. I was started on velcade revlamid and dex. Didn't do great with the velcade so I was switched to kropilis and all my numbers started coming down. In January of 2018 I was MRD negative and have stayed the same since then. I feel good and hope ro continue on this path. I chose not to do the Transplant which I am happy about.

So we're sharing our creativity? I'm smouldering, 2 years now. I'm an art therapist and paint to relax. I'm over the moon, my art has been picked for a gallery in the biggest city to me Hull in UK.

I was diagnosed in May 2023. I am in my ninth month of induction therapy. My hobby is pottery handbuilding. I created this piece to represent me triumphing over multiple myeloma. The base represents myeloma, like a vessel from a ship wreak at the bottom of the ocean, covered with barnacles and debris. The fish is me: emerging from the wreak and swimming up to the surface!

Acting is my “therapy.” When I’m performing, I forget myeloma and feel like life is normal again. I’m blessed to have these opportunities to live my best life despite my diagnosis.

Now enrolling people with multiple myeloma who have undergone autologous stem cell transplantation​​ (ASCT)​​. Participants in MagnetisMM-7 will advance research on a potential targeted treatment option for multiple myeloma, which could benefit future generations. For more details about the MagnetisMM-7 clinical trial, please visit: https://www.pfizerclinicaltrials.com/nct05317416-multiple-myeloma-trial?cmp=5ca0d465-6e7f-4fe9-b87d-8ed90a4bed3c&ttype=WEB

I want to start a discussion about revlimid. The uber expensive maintenance drug. I have been on 10 mg since 01/01/2023 and will be on it until 12/31/2024. The symptoms have dominated my day to day since 01/01/2024. When I hit a year in everything was amplified. The fatigue, nausea, neuropathy, balance, depression, severe muscled cramps then the newest severe GI symptoms that make me afraid to be too far from a bathroom. I do have some good days but when my bad days come they are bad. I am still working and really hope that come January next year I will drop some of the symptoms; muscle cramps, GI symptoms, malaise. I do a lot of pouting by myself and know the revlimid is working great to keep my labs in a great place. But, geeze I am tired of feeling poopy most of the time. My pharmacist in Hematologist's office has been great and offered to reduce the dose. I do not want to because again my lab number are beautiful. A nurse at the infusion clinic said people she has worked with do experience symptoms stopping after 2-3 months. Has anyone gotten to the other side and can report on this. I am a rational person and an RN myself (24 yrs) so I know the value of treatment. My other side is a whiny baby and want to feel an equilibrium for a better quality of life. Maybe work another 2-3 years and retire while in remission. I could go on longer about how stifled I feel but I would like anyone to tell me their revlimid journey. Thanks

I loom knit. These two cats are for the nurses and the bunny for child oncology.

"Victory Friday: Share your wins, big or small, from this week here." https://healthtree.org/myeloma/connect/group/87tPU6BgpkqMXXCv5kke

I am here six years undetectable from Multiple Myeloma. I contribute more than 50% of My Success in my myeloma Journey in meeting Jenny through another organizations a myeloma symposium. One of Healthtrees representative invited me to a Crowd ? meeting there I got so much information from providers of healthcare. There was information on treatment team expertise, I met or got connected with Sparkcures and their help with finding the right Hospital prepaired me to know exactly what to request of my oncologist and submit before making that Journey across a couple of states for the appointment a wonderful experience. My Specialist was impressed that I got there and all the records that he needed were there prior to my visit. When it came time for my stem cell transplant I had had enough knowledge from having the opportunity to meet other transplant patience to know how to prepare for the hospital visit. And what things I could take to give myself a better mindset. Everyone was so encouraging and inspiring that I've committed to coaching. Partiacpating in Twin program allows my condition to help someone. And if know I am not alone. I even got the courage to rock my bald head and use it as an opportunity to tell everybody about the Wonders of Healthtree organization. In case they knew somebody that may have myeloma precursors or MGUS, Smoldering M or Multiple Myeloma. I call it my M&M's and thanks to Healthtree we are eating them up. Its all in your attitude I believe... lets inspire someone else. Turning an poetical into a opportunity is everything. You can win! Thanks JA . My Life is BETTER by the 🌴 #MarronRibbonsAllAround lover, OhiO

I was diagnosed with multiple myeloma in the spring of 2016 and then was given 20mg Revlimid (daily) and valcaid (weekly) until my light chains dropped from 1660 to 375. In December 2016 I received a stem-cell transplant, which did not fully cure my myeloma. For approximately three (3) years I continued with 15mg Revlimid (daily) and then stopped taking it. For about two years (taking labs every six weeks), my light chains vacillated between 130 and 150. Now here I stand with no ill effects but not fully cured.

Hi all, It’s almost time for my husband’s SCT, next week and I have a couple of questions, (Sorry if these have been asked before, could not find an easy way to search past posts) Skin care What did you used for dry skin? I’m afraid his current products (lotion, oil) might be too harsh, especially after chemo. Aqua guard sheets what size did you get to keep dry the picc line? Is bigger better? Thanks, Margarita