Just started with Elrexfio (Elranatamab) yesterday. I like to use Elrexfio as I can see it as a spell used by Hermione in the Harry Potter series. Looking forward to sharing experiences as we move forward.

Hi all, has anyone else felt increased pain while taking teclistamab/tecvayli? I was told that many patients have reported pain but for how long after starting treatment? Thanks for sharing your experience!

Hi all, My husband is 35 days after SCT. He's doing pretty well all things considered. Blood counts, etc are recovering and some at at normal levels. He's back at work (mostly remote), working out, etc. One thing that's not gotten better is gut issues. First it was the interminable hiccups, then constipation and gas, now it's the feeling of being full very fast and having belly ache, specially at night. He's gotten many different meds, nothing has helped. Is there something that helped folks who had similar symptoms? Thanks! Margarita

Hello! I have Kappa Light Chain myeloma, high risk. I had four rounds induction with RVD and first stem cell transplant in September, second in February. Both were auto transplants. During the second, I got sepsis and was put on meds to increase blood pressure, midodrine and fludrocortisone. After I came home, I started developing joint pain. Started in elbow and pinky on left hand, then spread. I have pain in fingers, elbows, knees, and bottom of feet. Worse first thing in morning. Doctor took me off the fludrocortisone about 6 weeks ago, didn't help. Last week decided it could be the Bactrim, so they took me off that as well. So far, no changes. Fingers do swell somewhat overnight. Any ideas? Next step would be Rhuematologist.

Hello, I am at day 79 post SCT. I did my labs around day+60 and both free light chains were within range and ratio was at 1.12. Three weeks later, I did my labs again and the light chains doubled and are above the range. Both Kappa and Lambda were at around 28 mg/L. The ratio is at 1.02. Does this mean my I am relapsing?

Hello, I am at day 79 post SCT. I did my labs around day+60 and both free light chains were within range and ratio was at 1.12. Three weeks later, I did my labs again and the light chains doubled and are above the range. Both Kappa and Lambda were at around 28 mg/L. The ratio is at 1.02. Does this mean my I am relapsing?

Thoughts on ASCT? I am standard risk, diagnosed 6 months ago, have been on CyBorD. With all the advancements in treatments, I am wondering if it is really necessary for ASCT/harvesting. I have heard that some MM specialists even not recommending ASCT since there are so many other lines of therapy now, compared to 10+ years ago. Looking forward to hear some thoughts on this topic! Have a great weekend everyone!

It was wonderful sharing the Amyloidosis panel today with QunBin and Dave. Great to finally put faces with the posts- which have been so valuable to me. Thank you to everyone who attended.

Good Morning everyone. I was recently diagnosed with MM in May 2024. I take several supplements including Vit D, B-12, calcium, and methyl folate. After reading on gut microbe does anyone have suggestions on Probiotics? It seems some strains are better than others, so I wanted to check here to see if anyone has better efficacy with one over another. Thank you!

Hello, everyone. I had the CARVYKTI Car T Cell procedure in March 2023 and am thankful it helped to put me in remission until now July 2024. No chemo for over a year has been wonderful. But it's back and treatment will soon resume. The problem is, I am concerned about receiving treatment INJECTIONS in my abdomen. I've endured four life-threatening procedures in my abdomen and do not wish to receive treatment that involves injections in my abdomen if the side effects will worsen the pain I already experience from past surgeries. Can someone please share their experience with the injections in the abdomen? Thank you for making the time to read my post and provide feedback.