Hi everyone. I am 8 weeks post stem cell transplant and feel great. Because they gave me Melphalan, I lost my hair. My question is when does your hair usually begin to grow back post transplant? This has been one of the hardest parts of the journey for me. I am very thankful that I physically feel as good as I do so soon, and almost feel guilty that I am struggling with this. But thank you in advance for any input about your own personal experience with this. God Bless.

Hello, has anyone opted out of doing a stem cell transplant? I was on a clinical trial for my induction therapy, and I am now done with that. Now my doctors are saying up next is talking about the option of doing a stem cell transplant. I’m considering just harvesting my stem cells right now. I did really well during my induction therapy treatment with little to no side effects. I am 32 years old with 1 high risk factor. Please share if you decided to OPT out of doing a stem cell transplant. Thanks. 🙂

I have IVIG once a month after my Talvey injection. I have intermittent diarrhea, but I think it's because I have had three stem cell transplants, and my digestion intestines are stripped. I usually sleep during my infusion because of the pre-meds given to me before my Talvey I have only been sick once since last year so I think it is helping.

Good day: Is anyone else on IVIG transfusions? I received mine yesterday. I had violent diarrhea, nausea, chills, no fever, tried to vomit several times, but I have surgery for reflux so can't vomit. Last month I broke out in a rash after receiving the transfusion. Just wondering if this is normal. This is my 5th transfusion. First three went off without any problems or side-effects.

I need a feed back from patient who took essay tea and soursop

Hello everyone I did a SCT in September and I must say, I recovered very quickly. I was then put on Lenalidomide 25g after blood tests my oncologist was worried that my white blood cells were low and lowered my dose to 15g. After the blood works they were still low and I'm now off the meds until the 7th of February when I will be doing blood work. I'm a bit scared of the cancer coming back. Has anyone experienced this 😳

I am still in the smoldering stage White cell low, red cell still in a normal range on the lower end and hemoglobin still in normal range. Latest blood tests showed extremely low ferritin. Doctor advised an iron IV. It temporarily helped with tiredness, dizziness etc. My doctor wants me to have a colonoscopy and endoscopy looking for a slow bleed. Has anyone else experienced this? I sure need advice. Thanks.

Hello! I was diagnosed with SMM 3 years ago. My labs have steadily increased (worsened ) during that time. I know so much goes into determining when and if you need treatment. Presently I am not in treatment. My question is has anyone out there received any kind of treatment to increase your immune system? I am constantly getting sick. Since October Covid twice, treated for pneumonia twice and sinus infections in between. It’s so tiring!! I was curious if there’s anything out there for us that are not MM yet…. Thank you, Carla 😊

Hello All, Please be aware that the IRS will halt processing any tax returns between from Feb 26th through March 14th. Please keep up with Financial Assistance organizations and grant opportunities.

Since being diagnosed with SMM I've experienced tooth sensitivity/pain when chewing. It feels like I have multiple cavities (I was just given a clean bill of health by my dentist recently). Has anyone else experienced this? I researched this but have not found tooth pain while chewing as a symptom of SMM.