Hi all. Just wanted to understand perspectives from my PET CT scan . lytic destructive lesion is seen in the D8 vertebra with associated intraosseous soft tissue component. Lytic lesions is something I am aware of as MM symptom. What is this soft tissue thing and how common is this? Can I get some insights please? If there any links or videos discussing them, I would appreciate it if these can be shared. I believe knowledge is power. Thank you

I am in remission and on no medication and have suddenly started having frequent nose bleeds. Some worse than others. I don’r know if this is myeloma related or something different. Has anyone else experienced this?.

Sally posted in the Coaches Forum the following: HealthTree Coaches Well, after 6 years I now have a problem with insurance. And not just insurance paying for a treatment but for in my estimation, arbitrarily changing the vendor on my IVIG solutions. I learned today that Medicare nor anthem Blue Cross will pay for Car+T therapy. So my next treatment in March will be bispecifics. Dr Abonour also told me that he expected me to be down to one infusion a month by June. That means travel schedules don't have to be changed in September. Can some other Financial Coaches check out the posts and advise Sally. - Thanks

Hello all, Is anyone dealing with nonsecretory disease? We are understanding this is a MM condition where there is no detectable paraprotein in the urine or blood test. If you have the same condition how are you and your doctors monitoring your disease? How often are you doing PET or other scans? What therapies are you using? Thanks in advance for your responses and keep up the good fight💪🏼🙏🏼

Hi, has anybody gone through spinal bone decompression surgery? Also, how has the therapy been modified to prevent further such instances? Thanks

For those with AL Amyloidosis, or anyone interested in learning more, there's a webinar on February 22nd from 2 PM to 4 PM EST. The speakers will include Dr. Jeffrey Zonder from the Karmanos Cancer Institute and Dr. Othman Akhtar from the Froedtert Hospital Cancer Center. To register, click the link on the Amyloidosis Support Groups website: https://www.amyloidosissupport.org/webinars.html To find in-person conferences in your area, please check the following link: https://www.amyloidosissupport.org/upcoming_events.html

my husband came down with RSV last Wednesday , is coughing, wheezing and absolutely no energy.....drinking lots but I'm worried....any tips

looking for advice when your spouse comes down with RSV....any tips

Hi all, unfortunately it looks as though I am relapsing six months post Carvykti CAR-T. (My kappa FLC went from normal to high in one week). My doctor is actually “very surprised” since at my three month testing I was completely free of the disease. Just wondering if there’s anyone out there who relapsed under six months AND also had no sign of the disease at any point post CAR-T. Thanks in advance!