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jromines
Myelodysplastic Syndromes Discussion • April 21
Experiencing Palpitations and Low Platelets
Hello, I am 48 years old Female and healthy. I had palpitations back in Sept and had BW done and my platelet was low and neutrophils were low as well. I had BW repeated every month until I finally saw a hematology on Feb 11, 2026 and Feb 19 I had my bone marrow biopsy. Results came back March 4 and I was classified in very high risk MDS due to complex karyotype and 2 TP53 at 34%. I have no idea what caused this and my doctor just said it was just how my cells divide. 😬 My counts stayed stable and so there was a debate if I should start on chemo or not. Since I am high risk I opt in to start with 3 day oral inqovi. BW were done weekly post treatment and my counts dropped significantly. I didn’t need transfusion as per parameters. My counts started climbing up a bit last week and just had another BW today and waiting on results. The ultimate plan is to have allogenic stem cell transplant. My two siblings have been tested and waiting on results. So far I feel fine just a bit short of breath when I climbed a really steep stairs like 50steps. I have been walking daily and doing some light weight exercise. Fasting intermittently and eating healthy. Any other advise you guys can provide while I wait for my transplant?
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Dallas#1
Myelodysplastic Syndromes Discussion • April 19
Sudden unexplained weight lose
Hello my brother was diagnosed with MM in 2019 and got stem cell therapy and chemo but in 2022 started Teclistamab therapy but stopped it cuz lung infectionshe was losing weight nothing to bad but once they stopped it He can’t stop losing Eating same Did anyone experience this? In last year he dropped 40 pounds and last month 20
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Iliana • Admin
Myelodysplastic Syndromes Discussion • April 14
Webinar: Supporting Yourself During Treatment
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Integrative oncology is about supporting your whole self during cancer treatment. Missed our webinar with Dr. Krisstina Gowin? You can now watch the replay and learn about simple, evidence-informed ways to support yourself, like: 🍎 Nutrition & movement 🧘 Stress management & mind-body practices ✨ Other supportive options for Multiple Myeloma You’ll find practical tips to help manage symptoms, feel better day to day, and feel more in control during treatment and beyond. Watch the full recording: here:https://healthtree.org/myeloma/community/events/mar26-integrative-oncology-myeloma?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general