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Tammy
Myelodysplastic Syndromes Discussion • June 21, 2025
Coping With Falls as a Caregiver
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My husband's chemo did not work for his MDS and he does not qualify for a transplant. He was given 1-3 years but he has just given up. He has fallen twice now and I cannot get him because of my health issues. He fell getting out of the shower this morning and I had to call 911. I am going to make an appointment with out trustee to see if we could get help getting a walk in shower.
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ARTKAPLAN18
Myelodysplastic Syndromes Discussion • June 19, 2025
Procrit Not Working? Seeking Suggestions
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I have MDS WITH SIDE BLASTS.MY WHITE COUNT IS OK AND MY PLATELETS ARE OK. I TAKE A WEEKLY SHOT procarit. It supposed to stimulate the bone marrow.It is not working z. Any suggestions! Arthur Kaplan ask1836@gmail.com
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Rauchka60DAF
Myelodysplastic Syndromes Discussion • June 9, 2025
Managing High EPO Levels - Any Tips?
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My EPO IS up to 1763….. STOPPED Aranesp about 6 weeks ago, My EPO came down to 910 still extremely high. Can’t get any injections until below 500. Anyone else have this issue and what did you do to help bring down your EPO??? Mai am getting red cell transfusions.
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DianaSoto • Admin
Myelodysplastic Syndromes Discussion • June 9, 2025
Sharing Feedback on HealthTree Resources
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Hi everyone! I'm Diana, Product Designer at HealthTree. We're working to make your experience with our products and resources even better — and your feedback plays a key role in that. If you have 5 minutes, we’d greatly appreciate your input through this anonymous survey: 👉 https://forms.gle/aLChy5jwzUVQhox36 Thank you so much for your time and support!
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Rauchka60DAF
Myelodysplastic Syndromes Discussion • June 3, 2025
Tips for Lowering High EPO Levels?
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My EPO is 1753……..in has come down to 910 by stopping my Aranesp injections and adding B12 shots. What else can be down to bring it down to Below 500 so I can go back to my Randal or go to Rebozyl shots???? Also my D3 is 50. Waynjhugh. My HGB is 7.5