Community Gather Event: MDS Connection and Conversation - NOT RECORDED

This event will not be recorded. We encourage you to attend live.

Join the HealthTree Foundation for this open conversation for MDS & CMML patients. This is a great opportunity to meet others who understand what it's like to live with MDS & CMML. This group focuses on shared experiences and finding community. Join to share, listen, and connect with others who truly understand the MDS/CMML experience. Come with your questions, ideas, and an open heart as we learn from one another and build a community of understanding and support

By registering for this group, you are agreeing to abide by the Community Agreement & Guidelines found below

Community Agreement & Guidelines

1. Support, Not Science (Medical Boundaries)

1. Shared Experience only: This is a space for emotional connection, not medical advice or clinical consultation.

2. "I" over "You": Frame your story with "This worked for me" rather than "You should try this."

3. Trust the Pros: Always consult your oncology team before making any changes to your care plan.

2. The Circle of Trust (Privacy)

1. Confidentiality: What is said here stays here. Do not share members' names or stories outside the group.

2. Digital Lockdown: No recording or screenshots allowed

3. Respectful Communication

1. Step Up, Step Back: Be mindful of how much space you take; leave room for quieter voices to be heard.

2. Listen to Understand: Focus on witnessing each other's truths without interrupting or "fixing."

4. Emotional Safety & Boundaries

1. No "Toxic Positivity": You don't have to be "brave" here. Anger, sadness, and fear are just as welcome as hope.

2. Right to Pass: Participation is always optional. It is perfectly okay to just listen.

3. Self-Care First: You are encouraged to step away or leave the call if a topic becomes too heavy.