I am 74 years old and was diagnosed with CLL about a year and a half ago. At the moment, I am in the test and watch phase.

There are many alternatives to traditional western treatments that I have read about, none of which seem to provide real solutions. The best one can do is stay as healthy as possible, as happy as possible, and as optimistic as possible. I'm now trying our intravenous Vit C. Has anyone tried this?

Hey y'all! This is my first post on this platform. I'm 41 YO with High Risk CLL with complex karyotype, specifically the dreaded TP53 mutation. Sound effects Dun dunn duuun. My husband,who travels for work, and I have a busy 9 year old who is the best kid -fun, kind, helpful, supportive, and silly. I just started Calquence (acalabrutinib) and have been at full dose about a week and a the half. So far overall I'm feeling much better and labs are looking like they're moving in the right direction. The problem is I wake up with these awful headaches, like I can't see straight. I'm working hard to stay hydrated which often means waking up around 3-5 am to use the bathroom and the headache has already started. Caffeine is recommended and helps once I'm up for the day, but I can't take it for my middle of the night wake ups. The headaches make it really difficult to get moving in the morning to be present for my kiddo, so I'm testing out new morning routines for that. Any suggestions for the headaches that won't keep me from getting back to sleep? Any morning routines that have worked well for anyone else? Thanks!

I am curious to hear if anyone has had the serious muscle and joint pain and weakness on V. It has been terrible for me. I've gone from a very active, outdoor, energetic woman to one who has fallen several times, can barely climb one set of stairs, painful to kneel down or get up from the ground. This started at 3 months in and has continued even after being off the drug for 6 months. My Oncologist tells me that often these side affects don't go away ever. I live in the country, have raised horses for years, busy with yard work, a swimmer until taking the drug. Any suggestions other than light exercise? Since this problem started, I have actually fallen and fractured my kneecap because I have lost so much strength in my legs. This has actually changed my life in very unpleasant way. I am doing OK with the CLL, was first diagnosed in 2016. Only a couple of bad times when the WBC's got really low. Just wondering why they didn't mention this side affect when I started the drug and if anyone has heard if they have found a solution for this. I read the suggestions but no one seemed to have had the reaction I have had to taking V.

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