Your Feed

Filter by
See content from
Back to the latest
Avatar
4101Rowan
Acute Myeloid Leukemia Discussion • September 13
Midostaurin maintenance
30 yo daughter with AML FLT3-TKD INV16 has upcoming cycle 4 of consolidation and then done. Became MRD negative after cycle 1. Doc is trying to avoid BMT. Did anyone do the 12 months of Midostaurin after consolidation, and how did it go? Did it stall hair growth for 12 months? Any other issues with Mido maintenance?
Avatar
Margaret
Acute Myeloid Leukemia Discussion • September 4
Confused
I have high risk MDS/AML. I have been on AZACITIDINE and Venetoclac for over 2 1/2 years. I had a bone marrow biopsy in May this year that showed 5% blasts. I recently developed dizziness and fatigue and broke my leg. In the hospital they were talking to me like it was end of life for me. All my blood counts were extremely low. They did a blood smear of circulating blood and found there were no blasts circulating. My hematologist says it is the end, I refused to stop the chemo. I feel that I am getting mixed messages. Bone marrow biopsy in May was good enough. There are no circulating blasts. My oncologist is basing the end for based on low blood counts. I am confused.