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ladeseck
General Discussion • November 3
Post stem cell concern
Our 31 year old daughter has a terrible gag reflex (has all of her life) and is really nervous about getting a feeding tube placed after her Stem cell transplant:-( She is afraid she is just going to throw-up the second they try to place it! She knows that this has been shown to allow her other organs to basically not work so hard and so she can just get the nutrition she needs, but is really freaking out about this! Any suggestions or recommendations? Anyone else have this issue?
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sharper
Chronic Lymphocytic Leukemia Discussion • October 28
My story
I am 65 years old now but was diagnosed 7 yrs ago with Wait and Watch. Since then my spleen is enlarged, I have swollen lymph nodes in few places, WBC is 41,000 with low platelets and low RBC. Still no treatment at this time but I do have IVIG infusions every 3 months. I know treatment may be on the horizon but until then just trying to live healthy.
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ChioOsuna
Acute Myeloid Leukemia Discussion • October 28
Taking Charge of AML Care: Free Virtual Event
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📣 Calling everyone on the Mountain & West Coast! 🌄🌊 Join us for a free virtual event: “From Diagnosis to Decisions: Taking Charge of Your AML Care” 🩺✨ TOMORROW Oct 29, 2025 at 2:00 PM EDT 🔗 Sign up now: https://healthtree.org/lymphoma/community/events/oct25-mountain-westcoast-aml-diagnosis-decisions Dr. Brian Jonas will walk us through the basics of AML, the importance of genetic testing, and how to advocate for the best care with your healthcare team. You’ll also be introduced to local resources, support organizations, and others in your area who understand what you're going through. 👉 Can’t make it live? No worries, we’ll send a recording to all registered participants.
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Michael
Chronic Lymphocytic Leukemia Discussion • October 27
High WBC & Spleen: Is It Time to Treat?
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I have a 20 year history of cll, thus far just watching. No fatigue or adenopathy to speak of. WBC now up to 200,000. Doctor wants to treat me.Only other factor is my spleen is 17.5 cm. I feel fine. Is the white count or splenic size enough reason to treat?
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Iliana • Admin
Acute Myeloid Leukemia Discussion • October 24
Share Your Experience: Paid AML Focus Group
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Hi! We are seeking AML patients to participate in a paid, 2.5-hour virtual focus group scheduled for mid-November. Eligibility criteria: Diagnosed within the last year No treatment or receiving low-dose chemotherapy such as Ven+AZA or Decitabine Participants will receive compensation for their time and feedback. If you are interested, please fill out this form: https://forms.gle/WJrcwM7ALuoWKuN36
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XimenaG • Admin
Acute Myeloid Leukemia Discussion • October 1, 2025
Help Advance Cures by Sharing Your Records
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💚 Thanks to your participation, we completed our Tree of Hope! We’re deeply grateful for every name shared. Now, by also sharing your records, together we can bring hope closer and move toward a cure. 🌳 Our Tree of Hope grew with every name shared; patients, caregivers, and doctors standing side by side to create something bigger than ourselves. 👉 Be part of the cure: https://htree.org/takecontrolofyourhealth 🩸 As we close Blood Cancer Awareness Month, we honor the strength of our community. From EDUCATION that empowers patients with knowledge and COMMUNITY that brings comfort, to tools that help you TAKE CONTROL of your care and ADVANCING CURES TOGETHER, this month has been about more than awareness. It’s been about ACTION. ✨ At HealthTree, we believe that within the greatest adversity exists the greatest potential for doing good. REMEMBER: Together We Care. Together We Cure. THANK YOU!!!