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Thumbnail for Using Cevostamab Consolidation After CAR-T to Improve Outcomes | Adam Cohen, MD | #IMS25 #myeloma
Playlist: IMS 2025

Using Cevostamab Consolidation After CAR-T to Improve Outcomes | Adam Cohen, MD | #IMS25 #myeloma

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crimsonWalrus
Multiple Myeloma Discussion • September 23, 2025
Sharing My Journey: Femur Break to Remission
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My Name is Emma Groff I was diagnosed in July 2019 Had right femur pain for five months. Woke up one morning went to get out of bed my femur broke. I didn’t know what was wrong at the time. My daughter took me to the ER . X-rays showed my femur was broken. I was amitted to the hospital for further testing and was told I had multiple myeloma. It was stage one started treatment in August and was told I was in remission in October. Talked to a doctor at Penn Medicine Abramson Cancer Center in Philadelphia Pennsylvania. Went to Philadelphia in February for stem cell harvest had chemo in March. I have been in remission ever since. Had two back surgery last year. My doctor wanted to make sure my back issues weren’t coming from multiple myeloma. The last one was in November and my doctor had me get a biopsy no cancer cells. Than had a pet scan no lesions. So my journey has been a breeze compared to most.
Thumbnail for CELMoDs: Boosting T-Cell Therapies with Iberdomide & Mezigdomide | Joshua Richter, MD| #IMS2025
Playlist: IMS 2025

CELMoDs: Boosting T-Cell Therapies with Iberdomide & Mezigdomide | Joshua Richter, MD| #IMS2025

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Iliana • Admin
Multiple Myeloma Discussion • September 23, 2025
Share Your Voice to Improve Myeloma Care
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We need your voice to help improve cancer care for everyone. HealthTree is supporting a new study led by Dr. Craig Cole and Dr. Jeff Zonder at the Karmanos Cancer Institute. This important research explores how race, ethnicity, and socioeconomic factors impact access to care and treatment outcomes for people living with incurable cancers. 📝 If you are 18 or older and have a self-reported diagnosis of myeloma, you can help by completing a 25–35 minute survey. Your experiences and insights can make a difference in creating a more equitable future in cancer treatment. JOIN 👉https://www.healthtree.org/myeloma/curehub/private/research/I0DOs0JGGcOEncW1Vc67?utm_source=social_media&utm_medium=meta&utm_campaign=smmsurvey&utm_content=meta Together We Care. Together We Cure.
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https://www.healthtree.org/myeloma/curehub/private/research/I0DOs0JGGcOEncW1Vc67?utm_source=social_media&utm_medium=meta&utm_campaign=smmsurvey&utm_content=meta
Thumbnail for Ferritin & ALC Predict PFS in Myeloma Bispecific Antibody Therapy | Tarek Mouhieddine, MD #IMS25
Playlist: IMS 2025

Ferritin & ALC Predict PFS in Myeloma Bispecific Antibody Therapy | Tarek Mouhieddine, MD #IMS25

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Thumbnail for Blood Test Reveals Myeloma Genetics Using Cell-Free DNA | Dory Abelman, PhdD(c) #IMS25
Playlist: IMS 2025

Blood Test Reveals Myeloma Genetics Using Cell-Free DNA | Dory Abelman, PhdD(c) #IMS25

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Thumbnail for How MRD Status Is Being Used to Guide Myeloma Treatment Decisions | Ben Derman MD #IMS25
Playlist: IMS 2025

How MRD Status Is Being Used to Guide Myeloma Treatment Decisions | Ben Derman MD #IMS25

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Thumbnail for Lymphocyte Count Used to Predict Delayed Neurotoxicity in Myeloma CAR-T | Hitomi Hosoya MD #ims25
Playlist: IMS 2025

Lymphocyte Count Used to Predict Delayed Neurotoxicity in Myeloma CAR-T | Hitomi Hosoya MD #ims25

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Thumbnail for Shared Decision-Making Matters When Choosing Myeloma Treatment | Martine Elias,Myeloma Canada #IMS25
Playlist: IMS 2025

Shared Decision-Making Matters When Choosing Myeloma Treatment | Martine Elias,Myeloma Canada #IMS25

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Thumbnail for MRD Relapse vs Biochemical Relapse -Restarting Myeloma Therapy | Fredrik Schjesvold, MD, PhD #IMS25
Playlist: IMS 2025

MRD Relapse vs Biochemical Relapse -Restarting Myeloma Therapy | Fredrik Schjesvold, MD, PhD #IMS25

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dshaffer11
Multiple Myeloma Discussion • September 22, 2025
Sharing Experiences After Stopping Dex?
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I got off of Dex in June. I am on Sarclisa and Revlimid. I had a few weeks of upper back pain after getting off Dex which could be from working out or withdrawal from Dex. I'm not missing the Dex now that I have adjusted to being off of it. Interested in others' experience who aren't on Dex anymore.
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kschero
Mantle Cell Lymphoma Discussion • September 22, 2025
Next Steps: Jaypirca and Preparing for CAR-T
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My husband has stage 4 MCL. He recently completed 6 months on chemo and immunotherapy- with a severe allergic reaction to Rituximab and Gazyva. Never reached remission and cancer is showing an increase on recent PET scan. Currently on Jaypirca and is preparing for Car-t. Hoping this is best next step.
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Bemitch53
Acute Myeloid Leukemia Discussion • September 21, 2025
Staying on Oral Chemo, Decided Against BMT
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Hello, I am a 71, almost 72 yr old. Was diagnosed with AML 10 mos ago. Was getting regular bloodwork done for my PCP. Had no idea anything was wrong until I got a call from my Dr on a Sat afternoon. She told me that I had "Pancytopenia", she had already contacted an oncologist who saw me promptly the following week. Then, I had a whole panel more of bloodwork and a Bone Marrow Aspiration. I started chemo early Dec. '24. I am on oral chemo, Venetoclax/Inqovi, just finished my 5th cycle. I am in remission, and was informed I was eligible for a BMT. After much discussion with family and friends, decided against the transplant. It's a brutal procedure, even with modifications for my being older and with other health issues. So, I'm staying the course with the oral chemo and when things change or I relapse, we'll go from there.
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Pheba1
Multiple Myeloma Discussion • September 20, 2025
Managing Revlimid Shaking: Does Dose Timing Help?
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Good day all: This question is for those on Revlimid; What time of day do you take your Revlimid. I am on 10mg. 3 weeks a month. I also do Darzalex once a month. I have a terrible time waking up in the morning. I take Revlimid at about 8 p.m. I wake up shaking, like I am vibrating. Even my vision is vibrating. I suspect neuropathy. My oxygen is good at around 98, my pulse is around 60. I do have mild sleep apnea, but can not do a C-Pap machine. I only have apnea if I lie on my back. I tried a C-Pap for 18 months I developed some serious problems with air in my stomach and my ears. I am seeing a specialist, who recommended I just sleep on my side. I see her again in 3 weeks. I believe if sleep apnea was causing the shaking my waking pulse would be higher. My waking blood pressure is about 115/65. I wonder if the Revlimid is causing part of the problem. Does anyone take Revlimid in the morning? Thanks, Sharon