As noted here: https://healthtree.org/myeloma/community/articles/25-daratumumab-darzalex-faspro-hrsmm. It appears to be effective. I wonder if it improves quality of life.

My husband is going to start taking the pill for chemo for MSD ON Monday. Anyone been on this pill? And with what results? Any bad side effects? Thank you

Join us for a discussion with PAN foundation regarding their Financial Assistance programs. January 6th at 1:00pm ET

You have until January 15th to sign up for a ACA Obama Healthcare plan. The subsidies are still set to expire on Dec. 31st however.

Goodness, still waiting for Fish Test results after 3 weeks of waiting. The hematologist’s nurse practitioner called to explain that doctor wants to me to begin treatment for MM regardless of not having fish results; Nurse said doctor’s decision is based on free light chain ratio of 101 and kappa level of 89. Pet scan is normal but igm is below normal at 18; iga is low normal at 76 as is igg at 660. Plasma cells at 8-10%. (Also, no CRAB or other symptoms.) I still haven’t met the doctor because nurse practitioner has been handling everything. I am not sure if treatment is necessary at this point based on the above info. I have a previously scheduled appt with doctor but not till February (apparently this is a very busy doctor) but shouldn’t doctor have called me to set up an appointment now to discuss all this instead of Nurse practitioner calling me to tell me? I am getting a second opinion at the University of Michigan Rogel Cancer Center but I am thinking I should not treat with this first hematologist even though he is a cancer oncologist hematologist. I am obviously new to all this so any guidance anyone can provide would be great.

What is the thoughts and recommendations about having a fresh Christmas tree in your house? My husband had his SCT on October 13th.

I started bridging therapy before CAT-T. Has anyone had vertigo while on pomolyst? What other side effects might I experience?

So I’ve completed my first cycle of Dara KRD and had blood work done this past Friday, same day when I had my fourth treatment (only Dara and Dex that visit). While my Kappa went down almost 50% my Lambda went down a full 50% so my ratio actually crept up by 18. Stands at 264. What have others experienced after first cycle? I do understand that treatment can kill both good and bad cells. I do have IGg Kappa to be clear. Was hoping to see a marked decrease in my ratio. My cytogenetics is considered standard (11;14 translocation).

Has anyone had a stem cell transplant who has multiple chemical sensitivity and/or electro sensitivity? If so, how did you tolerate the SCT?

Hi everyone, hope you are all doing well. I wanted to ask a few questions about monitoring while in PR or VGPR and would really appreciate your experiences. For those who are in PR or VGPR: 1️⃣ How often do you get your M-spike and free light chains checked when things are stable? Is it every cycle, or does the testing interval become less frequent over time? 2️⃣ Do your numbers sometimes fluctuate up and down from one test to the next? If yes, what kind of variation have your doctors told you is considered normal or not concerning? 3️⃣ At what point do you and your medical team feel a drug may be losing effectiveness? Is resistance concluded only after several rising results, or can it be identified quickly? I would be grateful to hear how others have experienced this part of the journey. Thank you so much for sharing.