Hi all, My husband is going on 4 years since being diagnosed. Myeloma attacked his kidneys when he was diagnosed and was in renal failure. They missed it with Covid. The great news is after dialysis for months and then healing, his creatinine is in the normal range now. A true medical miracle. He has two types 414 and another mutation. He had a stem cell that lasted 7 months and car-t that lasted 4 months. Both difficult treatments. He always remains so positive. He has been on a combination of Talq * Dara and he has a fantastic Dr at Cleveland Clinic. Dr Jack Khouri. He is the absolute BEST. Treatment has worked but has come at a huge cost. His nails are deformed and he hasn’t been able to taste in 2 years with the exception of orange Crush. Is anyone else on this combination and what side effects have you experienced?

I had joined about 5 different groups. On this discussion but now the only one that shows up is newly diagnosed and others that I didn’t join. One I joined was relapse myeloma. Side effects Cant remember the rest but they aren’t there when I look at groups I’ve joined. Anyone else have this problem? Thank u

“I wanted to not only know what treatment options were available for my husband, but also to understand them.” As a myeloma caregiver, Ann Bailey found herself in a world she knew nothing about. She wasn’t just looking for data; she was looking for a way to make sense of the path ahead. By using HealthTree’s Cure Hub to track labs and explore options, Ann found what she describes as “an absolute gift.” It’s a tool that does more than show results; it eases the mind and helps caregivers ask the right questions during appointments. Watch her full story on the Myeloma Awareness Month page: htree.org/myelomaawarenessmonth2026