What is the success rate, does it really add years to your life, and is it worth having this procedure. My Oncologist wants me to have this done in a few months.

💬 Join our Non-Secretory & Oligosecretory Multiple Myeloma Community Gather 🤝 This special gathering is designed to bring together individuals living with non-secretory or oligosecretory multiple myeloma in a safe, understanding space. ✨ Connect on a personal level, share your experiences, and learn from others who truly understand what day-to-day life with this diagnosis can look like. 🌱 Whether you are newly diagnosed or have been living with this condition for some time, you are welcome here. ⚠️ Please note: This meeting is exclusively for individuals with non-secretory or oligosecretory multiple myeloma. If you’re unsure whether this group is the right fit for you, feel free to reach out at 📧 cynthia@healthtree.org 💜 We hope you’ll join us for this meaningful conversation!

I was just wondering if everyone that has high risk myeloma is taking supplements as well as their treatment. I have read about people taking them and it seems they are the people that are having the longest remissions. Anyone not taking any and still having a long remission with high risk Myeloma ?

Hello, I am 48 years old Female and healthy. I had palpitations back in Sept and had BW done and my platelet was low and neutrophils were low as well. I had BW repeated every month until I finally saw a hematology on Feb 11, 2026 and Feb 19 I had my bone marrow biopsy. Results came back March 4 and I was classified in very high risk MDS due to complex karyotype and 2 TP53 at 34%. I have no idea what caused this and my doctor just said it was just how my cells divide. 😬 My counts stayed stable and so there was a debate if I should start on chemo or not. Since I am high risk I opt in to start with 3 day oral inqovi. BW were done weekly post treatment and my counts dropped significantly. I didn’t need transfusion as per parameters. My counts started climbing up a bit last week and just had another BW today and waiting on results. The ultimate plan is to have allogenic stem cell transplant. My two siblings have been tested and waiting on results. So far I feel fine just a bit short of breath when I climbed a really steep stairs like 50steps. I have been walking daily and doing some light weight exercise. Fasting intermittently and eating healthy. Any other advise you guys can provide while I wait for my transplant?

“I found out I had leukemia in the waiting room.” For Melissa, everything changed in an instant. This AML Awareness Day, we honor the strength it takes to face the unknown, the support of loved ones, and the resilience behind every patient story. 💛 “Don’t be afraid to ask for help. Give yourself grace.” You are not alone. Watch full story: https://youtu.be/gM9LUQylsoE #AMLAwareness #LeukemiaAwareness #BloodCancer #HealthTree

Sometimes it begins without warning. A routine appointment. A test result. A moment that changes everything. An AML diagnosis can feel overwhelming, filled with uncertainty, difficult decisions, and questions about what comes next. This is why awareness matters. Because when patients and caregivers have access to clear information, the right resources, and a supportive community, they don’t have to face it alone. This AML Awareness Day, we honor every person navigating this experience and the strength it takes to move forward. 💛 Learn more about AML and resources that can support you: https://healthtree.org/aml/community/articles/26-aml-awareness-day?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

I was diagnoses July 24 with stage 3 and elevated lamba light chain (105), post BMT and on maintaince since. Last week my kappa light chains went up from 5 to 24. Anyone know if MM can switch from lamba to kappa and is a tripling an early sign of progression?

Hello my brother was diagnosed with MM in 2019 and got stem cell therapy and chemo but in 2022 started Teclistamab therapy but stopped it cuz lung infectionshe was losing weight nothing to bad but once they stopped it He can’t stop losing Eating same Did anyone experience this? In last year he dropped 40 pounds and last month 20