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dloken57
Multiple Myeloma Discussion • June 17, 2023
From Secretory to Non-Secretory: Anyone Else?
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I was diagnosed in 2017, SCT in 2018 all the while having secretory myeloma. In May of 2022, I had a bone marrow biopsy which was normal. In June I had my first CT Pet and it revealed active cancer in one of my ribs. My doctor informed me that my myeloma has become non secretory. Recently I have had a clean CT-Pet and normal light chains; however, I'm concerned about this new status. Have any of you gone from Secretory to Non and do we know is it possible to go the other way?
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DianaSoto • Admin
Multiple Myeloma Discussion • June 14, 2023
Help Researchers With a Pain Management Survey
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SURVEY PARTICIPATION NEEDED! 📄🔍 Help Dr. Craig C. Hofmeister from Emory Winship Cancer Institute and Karen Sweiss, PharmD from University of Illinois Chicago learn more about pain management in myeloma. Even if you haven't utilized cannabis for managing your myeloma pain your participation in this survey would be appreciated! Survey: https://healthtree.org/myeloma/curehub/public/research/jDHZDcGasrYXfMZtXbx8
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https://healthtree.org/myeloma/curehub/public/research/jDHZDcGasrYXfMZtXbx8
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maroonEagle
Multiple Myeloma Discussion • June 13, 2023
Understanding M Spike, IgA, & Light Chains
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How do you test for M spike? I asked my Oncologist and he said it’s the monoclonal protein and mine is the IgA. But the IgA has reference value and of course mine was high and goes to normal if medication is working. If it does not work IgA goes up and so is the kappa light chain and ratio.
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lilacSeal
Multiple Myeloma Discussion • June 10, 2023
Changing Light Chains & High Ratio Questions
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I am very new to MGUS, just diagnosed. I have a few questions. I've had repeat tests to confirm MGUS but the test results for my light chains seemed to have changed on my last lab report. I've typically had Lamda light chains, but with this recent lab it's showing kappa light chains and no lamda. Has anyone else experienced that? My Kappa:Lamda ratio is high also. Does anyone else here have no M spike? Thank you for sharing. I feel a bit lost at sea.