Could someone please give me their experiences with taking Dex? Does everyone gain weight with this drug? Does it make your appetite increase and is that what causes weight gain? If you control your appetite, can you control the weight gain? Thank you.

My request has two parts: 1) Besides searching the HealthTree clinicaI trial search function and SparkCures, I would like to find other sources with clinical trial information, such as NIH and others, and 2) I would appreciate guidance on whether there are medical centers, NIH, etc. that provide compensation for travel and lodging expenses.

Has anyone tried or is on Prolia for osteoporosis? What is your experience and side effects? I have heard and read bad things Can anyone share their experience please

Hi my mother was diagnosed with MM 2020. She recently got diagnose with Osteoporosis and has a couple lumbar compression fractures. Her doctor is recommending PROLIA. Has anyone tried Prolia what are your side effects and experience? I am scared because I have read horrible side defects such as osteonecrosis of jaw, severe muscle and bone pain, and rebound or stress fractures increases? Also we are looking into possibly doing kyphoplasty. Any thoughts please advice

Hello all. My mother was diagnosed with Lamba light chain MM in April 2023 at the age of 60 yo her FISH test was normal but had a few small bone lesions around her body. She started her treatment with a MM specialist at UCI in Orange, CA in June 5. Her doctor slowly started her on Dexamethasone first for two weeks, then every week or two Velcade, then Revlimid and lastly Daratumumab by July 11 her doctor confirmed she was in a complete remission 2-3 months earlier than average according to her doctor. The next step her doctor is recommending is an Autologous Stem Cell Transplant (ASCT) soon. We are hopeful but scared for this next challenge. We would appreciate your thoughts if this the best plan, other treatment alternatives for her or share your stories with your ASCT. Thank you so much.

Hello all. I thought of sharing my mom's journey since being diagnosed with Lamba light chain MM in April 2023 at 60 years old. I hope to help or give someone hope just as some of your stories did to us. Her FISH test was normal and a few small bone lesions around her body per her PET scan. She started her treatment with a MM specialist at UCI in Orange, CA in June 5. Since my mother wanted to avoid having to get a blood transfusion as much as possible, her doctor slowly started her on Dexamethasone first for two weeks, then every week or two Velcade, then Revlimid and lastly Daratumumab by July 11 her doctor confirmed she was in a complete remission 2-3 months earlier than average according to her doctor. Although she did felt tired, fatigue at some times, specially after her infusions days once a week she did not have major side effects. We believe what helped her the most was her low carb and low sugar diet, taking daily vitamins D, B12, B complex, Iron, Folic acid, Vitamin D, and her green juice Beetroot juice every other day. She also takes IV iron and vitamins every week which are a big help with hydration and energy boost to withstand the treatment without interruptions and major side effects. The next step her doctor is recommending is an Autologous Stem Cell Transplant (ASCT) soon. We are hopeful but scared for this next challenge.

My Husband was diagnosed with MM in 2021 we have been through sct 2022, he is now in stage 3 kidney failure and heart failure. We have our good days and bad days.I am alone will all this we have a wonderful son who is going to school in TX, where he lives with his family. Thank you Cyndi