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slhenk9
Multiple Myeloma Discussion • November 8, 2023
Experiencing Swallowing Issues?
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has anyone had issues with swallowing....it seems my husband has had a change but is dealing with it....did have an endoscopy and that was good, and they did try to stretch his throat but it didn't help much....just wondering how many have this issue.
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Dherring
Multiple Myeloma Discussion • November 8, 2023
Understanding Genetic Results and Risk?
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This is from my genetic page. As this disease progresses could it change or does it remain consent? Does this help with defining my risk level. Thanks in advance.
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roseCrow
Multiple Myeloma Discussion • November 8, 2023
Struggling With Infections Despite IVIG?
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My immunoglobulins have not recovered since diagnosis 2 ½ years ago, even after SCT. I was put on IVIG in March, after back-to-back respiratory infections. I have been receiving it monthly since then, however I have had 2 more hospitalizations since then. Has anyone had similar? The specialist says my immune system is likely damaged permanently. IgA and IgM are too low to measure. IgG won’t stay jp between infusions.
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slhenk9
Multiple Myeloma Discussion • November 8, 2023
How Do You Manage Severe Back Pain?
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back pain - my husband is on Dara/pomalyst and dex and has had back pain, maybe nerve pain.....today had a pain that almost dropped him to his knees momentarily.....is this common...I know everyone is different...he does see an acupuncturist which he scheduled one today....just wondering how everyone deals with pain issues....
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wgarcia
Multiple Myeloma Discussion • November 6, 2023
Coping with Pomalyst: Flu & Brain Fog?
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HI Everyone! Anyone on the treatment course of POM/DARA/DEX. I am on round 1 day 20. The side effects I believe are the POM. It makes me feel like I have the flu and a lot of confusion and cloudiness and weakness. I was on Revlimid for induction and after SCT and had no real issues other than being tired sometimes. Anyone else have issues with POM?
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Hotrod1946
Multiple Myeloma Discussion • November 4, 2023
A Heartfelt Thank You to HealthTREE
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Thank you so much to Health TREE Multiple Myeloma for all your wonderful and helpful information! Not knowing much about MM we found this information and education invaluable.Sadly my husband passed recently so no longer need the information. Again thank you so much!
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TheBloomingSpirit
Multiple Myeloma Discussion • November 3, 2023
Managing Darzalex Sinus and Injection Site Pain?
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I have been on Darzalex fastpro injections and Pomalyst pills since May. Soon after starting both I developed Dry Sinuses with a crustation in the sinus cavity per a scope down my nasal passage. Current treatments from ENT not working so wondering if this is a side effect of the above meds and if so has anyone else had it and found a solutions. Also my stomach after so many shots is developing scar tissue and getting more painful. Has anyone else dealt with that and have any remedies? (castor oil packs?? stomach massage??) Thanks for any input.