Hello. I was diagnosed with MM in August 2020 and after a difficult start with treatment I feel fortunate that I achieved complete remission and have stayed there for a few years now. I have not had SCT but have been on a maintenance regimen of Datzalex and Revlimid. Due to Revlimid side effects (crushing fatigue and neutropenia and GI issues), I’m now off Revlimid and on Dara only, with the expectation that will be the treatment plan indefinitely unless/until I relapse. I’m wondering whether there are others out there who are likewise only being treated with Dara and how that has been going for you, and whether you have any concerns about this approach. Thanks in advance for any input!

Hi all, I'm just a month into my MM journey, and have started on infusion therapy a few weeks ago. I was glad to see the 55 and under group. I'm wondering if anyone here has gone through talking to middle-school aged children about your diagnosis. I have 2 boys - ages 10 and 12, and thus far I have been pretty vague about what I'm going through and just said I have a "blood disorder I'm getting medicine for." I will have an autologous stem cell transplant this summer, so I clearly need to have more of a conversation with them before then. Wondering if this group has anything to share. Thanks!

As I have diabetes and excess weight in addition to MM, I'm curious about the weight loss drugs. Has any here with MM tried them? What have been the impacts?

Hi! This is my first time asking a question, do I appreciate any response. I was diagnosed with Smoldering myeloma December 2022. My question is have anyone heard of Hypogammaglobulinemia and nephrotic syndrome. This was indicated on my serum protein results.