Hi All I was just diagnosed with SMM a month ago. I live under a mile from a farm that uses pesticides weekly - they spray, I called and asked they said they do it late at night or early in the morning. I don't know what to do short of selling my house. Outside of closing my windows on the dates they spray any advice? Anyone in a similar circumstance?

Hello all! Was diagnosed with IgA Lambda MM in July 2023 and underwent eight cycles of VRD. Am now in remission. Unfortunately developed peripheral neuropathy in my toes, likely from the Velcade/bortezomib, and have been taking gabapentin, but to no avail. Any suggestions?

Newly diagnosed low risk SMM. Getting looked after at Dana Farber in Boston. I’m truly devastated and shocked by the diagnosis. I feel like I can’t plan for the future and have sunk into a depression. I have an 11 year old that I fear I won’t be able to be there for. Watching and waiting approach feels like absolute mental anguish. Should I try to find a clinical trial? My family thinks since it’s low risk I’m “crazy” for not being able to mentally move on. I don’t know really what to do next.

I am on Acyclovir and have been since my transplant. Is it others experience to be on it indefinitely? Also, has anyone gotten the shingles vaccine? I was under the impression Acyclovir was a preventative for shingles.

Hello. As of 2024-05-07 I haven't yet been formally diagnosed - still undergoing a battery of tests. It looks to me that it'll be either IgA kappa smoldering MM or active MM. I have no symptoms yet. Suspicion of a plasma cell dyscrasia was triggered by blood test results for an unrelated issue I was having. - My m-spike on 2024-02-13 was 1.29 in the beta region of the SPEP test and rose to 1.39 on 2024-04-09. Gamma region is low. - My FLC ratio is aggressively moving upwards. It was 45 on 2024-02-13, jumped to 72 on 2024-04-02 and then jumped again to 89 a week later. If this trajectory continued as expected, I'm past the dreaded 100 level for MM. - My IgA level is around 2200 mg/dL as of 2024-04-09. - Bone marrow biopsy done on 2024-04-02 showed neoplastic plasma cells that represent 15%-20% bone marrow cellularity. - Urine immunotyping done on 2024-04-09 shows two free kappa paraprotein peaks. - Urine protein electrophoresis done on 2024-04-09 shows two m-spikes: #1 is 4.8% and #2 is 3.1%. Interpretation on the report is, "Two peaks in the beta region consistent with paraprotein peaks". - Bone density test done on 2024-04-12 showed osteoporosis in lumbar region. I start receiving Xgeva shots 2024-05-08. - PET-CT scan done on 2024-04-17 showed no lesions and no sign of malignancy. - As of 2024-05-07, still waiting on the FISH / cytogenetic analysis report(s). Calcium level is normal. No sign of renal insufficiency. No anemia. No bone lesions. While not yet committing to a diagnosis, my hema-onco said treatment in my future is likely. He wants to do some more blood work to establish a definite trend in the numbers and to see if I reached that myeloma defining event of FLC ratio >= 100. When the time comes for treatment, he recommended an outstanding myeloma specialist at Mount Sinai. I'm confident that I'm in good hands.

I’m day 20 following 2nd ASCT, home but absolutely exhausted. I’ve never felt so tired. Does this pass? Thanks.