I'm here for be a Multiple Myeloma patient since October 2019, have four months of treatments, and have a SCT -Auto in October 2020, since that date I'm in remission. My name is Jose Delacruz, Baton Rouge, Louisiana . I'm almost 71 years old

I was diagnosed February 2024. I am finishing my 4th month of induction and have been told my numbers look excellent. I have 2 more months if induction therapy but my shots now will be every other week. I will then harvest me stem cells and go on maintenance therapy. My body was in so much pain in February, but I am feeling so good now. I still have fatigue but I can deal with that and rest when I need to. My doctor said live your life and that’s just what I am starting to do

I was diagnosed in October of 2016. A real big shock to say the least. I was started on velcade revlamid and dex. Didn't do great with the velcade so I was switched to kropilis and all my numbers started coming down. In January of 2018 I was MRD negative and have stayed the same since then. I feel good and hope ro continue on this path. I chose not to do the Transplant which I am happy about.

So we're sharing our creativity? I'm smouldering, 2 years now. I'm an art therapist and paint to relax. I'm over the moon, my art has been picked for a gallery in the biggest city to me Hull in UK.

I was diagnosed in May 2023. I am in my ninth month of induction therapy. My hobby is pottery handbuilding. I created this piece to represent me triumphing over multiple myeloma. The base represents myeloma, like a vessel from a ship wreak at the bottom of the ocean, covered with barnacles and debris. The fish is me: emerging from the wreak and swimming up to the surface!

Acting is my “therapy.” When I’m performing, I forget myeloma and feel like life is normal again. I’m blessed to have these opportunities to live my best life despite my diagnosis.

Now enrolling people with multiple myeloma who have undergone autologous stem cell transplantation​​ (ASCT)​​. Participants in MagnetisMM-7 will advance research on a potential targeted treatment option for multiple myeloma, which could benefit future generations. For more details about the MagnetisMM-7 clinical trial, please visit: https://www.pfizerclinicaltrials.com/nct05317416-multiple-myeloma-trial?cmp=5ca0d465-6e7f-4fe9-b87d-8ed90a4bed3c&ttype=WEB

I want to start a discussion about revlimid. The uber expensive maintenance drug. I have been on 10 mg since 01/01/2023 and will be on it until 12/31/2024. The symptoms have dominated my day to day since 01/01/2024. When I hit a year in everything was amplified. The fatigue, nausea, neuropathy, balance, depression, severe muscled cramps then the newest severe GI symptoms that make me afraid to be too far from a bathroom. I do have some good days but when my bad days come they are bad. I am still working and really hope that come January next year I will drop some of the symptoms; muscle cramps, GI symptoms, malaise. I do a lot of pouting by myself and know the revlimid is working great to keep my labs in a great place. But, geeze I am tired of feeling poopy most of the time. My pharmacist in Hematologist's office has been great and offered to reduce the dose. I do not want to because again my lab number are beautiful. A nurse at the infusion clinic said people she has worked with do experience symptoms stopping after 2-3 months. Has anyone gotten to the other side and can report on this. I am a rational person and an RN myself (24 yrs) so I know the value of treatment. My other side is a whiny baby and want to feel an equilibrium for a better quality of life. Maybe work another 2-3 years and retire while in remission. I could go on longer about how stifled I feel but I would like anyone to tell me their revlimid journey. Thanks

I loom knit. These two cats are for the nurses and the bunny for child oncology.

"Victory Friday: Share your wins, big or small, from this week here." https://healthtree.org/myeloma/connect/group/87tPU6BgpkqMXXCv5kke