Anyone has an idea what brand of protein powder should I take after my SCT to improved my white cells and immune system. Thank you

Hey all I am getting my Covid shot and Pneumonia shots today follow up with Tylenol. Anyone had there shoot with any side effects. Imine was Kappa IGa Oh this morning every joint in my body is on fire. Won't do all 3 again they added RSV

I am having hyperparathyroidism - high blood calcium, lots of aches, high parathyroid hormone etc. The increased general aches are the most troublesome side effect so far, but doing nothing risks kidney, bone and heart health so I have to act. My doctor tells me that she sees this often in people who have had upper body, neck and head radiation in their pasts. I had this as a child, radiation to shrink my adenoids. I am wondering whether any other MM patients here who have had radiation in their upper bodies or necks to deal with spine pain or for some other reason have developed hyperparathyroid issues. I am scheduled for surgery in early November - they have visualized one of the four parathyroid glands that is enlarged so will take that out, then while I am on the table they will test my parathyroid hormone level - if it has come down they will close me up - if not, they will take the rest of the glands, leaving only one half of one of them which I am told is sufficient to produce enough hormone. So - has anyone else faced this?

Anyone on kyprolis? Side effects? Also Sarclisa? 6 hour infusion!

I've been recently with diagnosed high risk mm and am on the quad therapy (DRVD) through two cycles and so far have seen my key cancer markers dropping very well. I'm now trying to decide where to have the SCT done in mid November. I live in Chicago and deciding between University of Chicago Hospital (Dr. Derman) and Mayo in Rochester (Dr. Dingli). My initial treatment has been through U of C but received a consult at Mayo. Has anyone here been treated at Mayo or U of C for SCT or otherwise for myeloma? Would appreciate any feedback!

I am a IGG kappa patient , aged 69 , active , and pretty healthy other than MM I have t 11:14, and I am under the care of an amazing MM specialist in Toronto, Canada Started induction in March this year, on DRD. I elected not to take V due to already having some foot neuropathy. I had MGUS for nine years and SMM for 2 , so had plenty of time to read and learn and research. Knowing my own body well , and my co - morbidities , I decided against having a SCT. There is no guarantee it will definitely give me a long or lasting remission, it’s not an easy process or recovery for many , and it does not mean I will survive longer , necessarily. My caregiver is my 71 year old husband , who , I know is finding this diagnosis difficult, and may not cope with a long recovery on my part , and who also has his own potentially serious health issues. Even if you decide on a SCT , the chances are you will still stay on maintenance drugs , so what’s the point ? You also up your risk of secondary cancers with high dose Melphlan , even more than just on Rev alone. I start maintenance this month , and am so happy to have the Dex gone ! I generally feel well and manage my side - effects without much trouble , generally. Doses can always be reduced / changed etc I believe new and improved treatments are fast emerging in myeloma , and there will be more options to keep us going down the line , hopefully. SCT, in the near future, May no longer be the standard of care for most. All the above is just MY opinion , and of course your decision is very personal , taking all your own factors and your doctor’s recommendations into consideration- and your own gut feeling. My best wishes , going forward, whatever you decide

Can either Zometa or Rev irritate areas in the joints or bone where previous surgery has occurred?

Hello. This last week I found out I was positive for amyloidosis lambda light chain. I was dx in 2023 with SMM but had progressive neuropathy , CTS, autonomic dysfunction and afib and junctional rhythm. After three biopsies they finally found it. Starting on Dara + Cybord on Thursday. If any one could tell me if they have this and how they did with this regime? Thank you.

12 years ago I'd never heard of MM. My beloved Wife died after fighting this disease so heroically for all those years. This year, I also learned that, a member of the Royal family whose Coronation I attended in 1953 sitting on my father's shoulders above the crowds, also had a chance to shine a light on this terrible affliction but chose not to. A huge opportunity missed, I feel.

I am a year and a half post transplant and on maintenance Pomalyst. I have a lot of problems with my skin especially my face with it scaling up and peeling. When I am on my off week it seems to get better. Does anybody have any suggestions for creams, etc that might help with this.

My wife is 61 year old. She is in good health and used to exercise at least an hour a day five days a week. She was diagnosed with multiple myeloma in July 2024. She had developed three compression fractures of the vertebrae T8,T11 and L1 Over a few days. She also developed high calcium level. She was started on quad regimen, including. Darzalex, Revlimid, Velcade and Dexamethasone. Her bone marrow biopsy shows she has one high risk feature 1q gain. We met with Oncologist after eight weeks of treatment. Her light changes have normalized and M protein has gone down from. 1.2 to 0.1. During our first appointment at the time of diagnosis our Oncologist told us that she will get four cycles of induction therapy followed by stem cell transplant. However, during recent appointment after eight weeks of treatment and bone marrow cytogenetic report at hand, he told us that stem cell transplant Is an option for her but not necessary. He says whether she gets stem cell transplant or not her survival will be the same. So she could skip the transplant and go straight to maintenance therapy with Revelimid and Darzalex. We know that stem cell transplant was being offered as a standard treatment to younger and fitter patients till recently And my wife would fall in that group, but it is also a harsh treatment with some serious side effects. After the recent discussion with our oncologist We are not sure which way to go. We are looking for feedback from patients who were candidates for stem cell transplant, but decided to go straight for maintenance therapy with Darzalax and Revlimid. We would like to know how they are doing and what is their experience so far. Thank you.

Anyone else experienced cough after central line placement? When I walk up the day after it was placed, my throat felt a little scratch, as if getting a cold. About three later I developed a cough; no mucus just dry cough with scratchy throat. I've been drinking hot tea to help, but I'm hoping it will resolve before my SCT in two days ... Or can do still do SCT if someone has a cough?