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Lola

Multiple Myeloma Discussion • July 1, 2025

Navigating ACA Insurance & Costs?

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Hi Diahanna, could you point me to your resources on how to navigate ACA policies? How much will it cost for myself and spouse to have good coverage (meyloma level coverage), including premiums, deductibles, prescriptions etc. I’m still 8.5 years from Medicare and have to find a way to get care that won’t bankrupt me. I should get 1.5 years on Cobra but still have to find care for the remaining 7 years. Thank you

Lola

Multiple Myeloma Discussion • July 1, 2025

Seeking MM Specialist in Johannesburg?

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Can anyone recommend a MM specialist in Johannesburg? I’m moving there and need to establish with a new doctor. It’s just maintenance care at the moment 🤞 but still need to get blood tests and lenalidomide refills regularly. Thanks!

Lisa521

Multiple Myeloma Discussion • June 30, 2025

Experiencing a Tough ASCT Recovery?

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I had my ASCT on May 23, 2025, about 6 weeks ago now, and I am still feeling awful. I am very weak and fatigued and feel as though I have been run over by a train with body aches all over my body. My appetite is still poor and I have recently begun vomiting after eating, not every meal but much more frequently than when I first had the transplant. I try to walk and move around but get very winded and have to stop and rest after going a very short distance. My doctor said that it can take 100 days to start feeling better. My blood results are great — white blood cell count, hemoglobin, platelets are all normal. Is what I am going through normal for other people who have had a transplant? I think I expected to start feeling better much and getting on with it much faster and am just wondering what other people’s experience has been. Thank you so much for your feedback.

Playlist: Autologous Stem Cell Transplant (ASCT)

What should I know abut visitors during the ASCT process?

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gknautz

Multiple Myeloma Discussion • June 30, 2025

Signs of Recurrence: Blood Work or Symptoms?

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basic question: do most mm patients find out about recurrence thru blood work or symptoms?

Playlist: EHA 2025

Venetoclax for AML: Shifting Care from Hospital to Clinic | Aaron Goldberg, MD, PhD | #EHA2025

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Playlist: EHA 2025

Less Time in the Hospital: Real-World Benefits of Venetoclax for AML Patients | Aaron Goldberg, MD | #EHA2025

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Playlist: EHA 2025

Promising New Combo Treatment Shows High Remission Rates in AML Patients with NPM1 and KMT2A Mutations | Harry Erba, MD | #EHA2025

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Playlist: EHA 2025

Hope for Relapsed AML: Ziftomenib Shows Promise in NPM1-Mutated Leukemia | Eunice Wang, MD | #EHA2025

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Playlist: EHA 2025

Skip navigation Search Create Avatar image Implementation of Hospital-Level Care at Home for Acute Leukemia | Nikesh Shah, MD | #EHA 2025

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Playlist: EHA 2025

New Advances in Treating Acute Lymphoblastic Leukemia | Mark Litzow, MD | #EHA 2025

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$Thumbnail for Unmet Medical Needs of Patients Who are Lenalidomide Refractory | Claudio Cerchione, MD | #EHA2025$

Playlist: EHA 2025

Unmet Medical Needs of Patients Who are Lenalidomide Refractory | Claudio Cerchione, MD | #EHA2025

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Playlist: EHA 2025

Improved Survival in Young B-ALL Patients with Blinatumomab | Mark Litzow, MD | #EHA 2025

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Playlist: EHA 2025

Does Race Have an Impact on CLL Care? What the Latest Data? | Adam Kittai, MD #EHA2025

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Playlist: EHA 2025

Advancing ET & Myelofibrosis Care: mutCALR Antibody Therapy | John Mascarenhas, MD | #EHA 2025

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New Study Finds CLL Can Start From Multiple Abnormal B-Cell Clone Groups

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New Study Finds CLL Can Start From Multiple Abnormal B-Cell Clone Groups image

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Is CAR T-cell Therapy Possible for Myelofibrosis?

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Is CAR T-cell Therapy Possible for Myelofibrosis? image

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Playlist: Classes of Drugs

What immunotherapies are used in myeloma?

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Playlist: EHA 2025

Could Clonotypic B Cells Be the Key to Myeloma & AL Amyloidosis Origins? | Bruno Paiva, PhD | EHA25

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MikeW

Multiple Myeloma Discussion • June 29, 2025

Heart PVCs After ASCT: Anyone Else?

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I’m 3 years post ASCT, and recently been diagnosed with cardiac PVC’s at 26% and will undergo a cardiac ablation in the coming weeks. Have others that have cone through MM treatments experienced the same??

Playlist: Autologous Stem Cell Transplant (ASCT)

When can I expect to feel better after transplant?

Video details & playlist

Playlist: EHA 2025

All-Oral Myeloma Combo: Mezigdomide + Tazemetostat or Trametinib | Paul Richardson, MD | EHA 2025

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Playlist: EHA 2025

Slowing CAR-T Cell Expansion with Steroids 2 Prevent Delayed Neurotoxicity | Yi Lin, MD | #EHA2025

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Mallorylee7

Multiple Myeloma Discussion • June 28, 2025

Managing Migraines on Quad Treatment?

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Hi, I am not a patient, however, my dad was diagnosed with M M in March. He is in his final week of his quad treatment, and for the most part has done very well. However, he has been experiencing migraines for the last two weeks. They are progressively getting more frequent and are debilitating. His local oncologist prescribed him Sumatriptan which helps for a little while, but they come back. He also scheduled him to have an MRI this week. Has anyone experienced this with the quad treatment? Does anybody have any recommendations for something else that can be prescribed to him? He does not meet with his specialist at city of Hope until July 8 and his local oncologist is on vacation for a week. His primary care doctor will not prescribe him anything because of his treatment. Thank you in advance!