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Beachgirl

Multiple Myeloma Discussion • July 5, 2025

CAR-T Experiences & Managing Side Effects

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Hello. I am the caregiver for my husband with multiple myeloma. We, together with our Dr chose to do CAR-T. He had SCT 8 years ago & has been on revlimid. His M-Spike is rising, revlimid is not working any longer. CAR-T is, from what they tell us 1 & done, no maintenance & remission. I would love to hear, the honest truth, from anyone who has gone through this, & your experience, as caregiver & or patient. The side effects are scaring us………..

Thumbnail for If I am not eligible for transplant what treatment options should I consider? How effective are these treatments compared to transplant?

Playlist: Autologous Stem Cell Transplant (ASCT)

If I am not eligible for transplant what treatment options should I consider? How effective are these treatments compared to transplant?

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rudiflik

Multiple Myeloma Discussion • July 5, 2025

Anyone Have Experience With TALVEY?

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Good morning all. This is my 5 th year w/ MM. I have gone trough all the normal treatment availabilities suggested by renowned Oncologists at Dana Farber Boston and Sylvester Cancer Center in Miami. My last treatment was Elrexfio every other week with remarkable success results. Remission within 2 month. UNFORTUNATELY, this lasted only for another month w/ my Kappa Lightchain and M-Spike raising again. I am checking in at Dana Farber Brigham Women’s next week for. 10 day test to see if I can handle thee new recommend drug TALVEY. Does anyone have any experience with this drug? Thank you

Playlist: Allogeneic Stem Cell Transplant

What is the process of donating stem cells for allo, is there a difference between the two methods

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Playlist: Autologous Stem Cell Transplant (ASCT)

Is it possible to have no response to transplant?

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Playlist: EHA 2025

Disparities in Accessing CAR-T and Bispecific Antibody Therapies | Craig Cole, MD | EHA 2025

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Playlist: Allogeneic Stem Cell Transplant

What is an allo transplant?

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Sugar

Multiple Myeloma Discussion • July 4, 2025

Managing Benadryl Fatigue: Any Tips?

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I receive a benadryl with Darakex Faspro, Delcade and Lenalidomide. It takes about 2/12 hours to get the pre-meds and the injections. The worst part is that I then have to drive home (30 minutes) and I sleep the next ten hours because I am so sensitive to the Benadryl. Sometimes these appointments are at 10 AM and ruins the next 24 hours for me with fatigue and grogginess. Is the benadryl really necessary and/or do you have any advice for how to navigate? Requesting later appointments has already been tried - they are very busy and you "get what you get." Thanks for any thoughts.

Wardy

Multiple Myeloma Discussion • July 4, 2025

Understanding Protein Electrophoresis Results?

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Hi Everyone I'm a newbie here and wondering if anyone knows what my lab results mean= IgA lambda band visible =9.2g/linc Betaglobulin region IgG Kappa paraprotein visible =3.0g/l Not sure what all this means on a Protein Electrophoresis Lab Test? Thank you in advance for any help/advice on understanding these lab results.

may33jen

Multiple Myeloma Discussion • July 4, 2025

Cataract Surgery on Revlimid: Any Experiences?

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I was wondering about anyone had cataract surgery and their feedbacks. I was diagnosed with MM in January 2024 and went through induction treatment of DVD. I did not have ASCT and now on maintenance care of revlimid 5mg 21days and monthly injection of Darzalex. My oncologist recommend I stop revlimid 2 weeks before and 2 weeks after surgery. My myeloma specialist at UCSF said that is not necessary. I appreciate your feedbacks.

Playlist: Understanding T-Cell Redirecting Therapies

What t-cell redirecting therapies have beed FDA approved? What are there indications?

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