I was recently informed that because none of the recent tests done on my have found cancer cells that I am no longer required to come in to the hospital on a monthly basis for blood testing. From now on this would be done every three months. Is this normal for those on remission?

Just wondering if anyone has switched from Revlimid to venetoclax, specifically those with myeloma and a translocation 11;14? Any problems with insurance and also has anyone made this switch while under care at MSK? I’ve completed 9 cycles of Dara KRD and my Kappa has come down from 103 to 7 and my IgG has gone from 4308 to 1411 which is in normal range. My Spike dropped from 3.06 but has only gone down .1 the last five months. From 1.09 to .99. Thanks.

any comments about the JNJ trial study from anyone? my husband is on it and would like to share any info

I am at day 25 and my lymphocytes are high around 15. I have had two rounds of Dex and they aren't recommending more dex. Has anyone else had high lymphocytes and did they eventually go down?

Does any one else have other health issues beside MM. I have MM with 10% cryoglobulins, no bone lesions on PET scan. Currently showing remission. I have MGRS, which is Monoclonal Gammopathy of Renal Significance. My disease was discovered because kidneys were being wiped out and BP was spiking out of control. BP now 125/72. So, that is all good. I have had an illness called Polymyalgia Rheumatica (PMR) for over 20 years. Giant Cell Arteritis for at least ten years. Both cause pain and fatigue. Revlimid causes pain and fatigue. I also have SEVERE Diverticulosis. The severe in all caps is how the doctor wrote it on the colonoscopy report. Between that and the diarrhea caused by Revlimid it is a three ring circus. I have a chronic hip problem that ended up being torn hip tendons. That is going to require surgery. The tendon damage may be from inflammation from the PMR. So, how does a person cope? I think I have done a great job so far without getting down or depressed. I kept a positive attitude through SCT, and induction chemo. This hip surgery may be a bridge too far. Recovery takes about 6 months. I am wondering if there are others who are coping with multiple health issues.

Can a short limited fast help with the treatment of myelofibrosis?

Hello All Effect Sept 1st, Blood Cancers United will be changing their copay program. They will only be providing copay assistance to Medicare, Medicaid and TriCare enrollees, shifting away from private insurance for specific disease funds. This shift will affect: ALL, CML, MDS, MPNs, Myeloma, and Waldenstrom Macroglobulinemia

For those who returned to work after treatment, what helped you figure out what you could realistically handle? Did you return gradually, change your hours or responsibilities, or have to advocate for accommodations at work? #blackhealth

my husband has been on the JNJ trial since July 1 and has been experiencing knifing pains in back and lower back....been in hospital 5 times and maybe 12 days....just can't stay at home cause he can't get out of bed with the pain at times and had to call the ambulance twice....anyone else heard of this...are we the only ones experiencing this